The Inforare project aims to set up a system for the sharing of clinical and familial data, in order to study how genes are related to the severity of sickle cell disease. While the computerisation of clinical records represents a valuable research goal, an ethical framework is necessary to guarantee patients' protection and their rights in this developing field. Issues relating to patient information during the Inforare study were analysed by the steering committee. Several major concerns were discussed by the (...) committee and formalised in the patients' information letter: educating patients to aid the recruitment of family members, rules of confidentiality and the disclosure of aggregate, individual and unexpected research results. This paper presents the main issues addressed. (shrink)

The Mamluk Sultanate: A History By PetryCarl F. (Cambridge: Cambridge University Press, 2022), xix + 358 pp. Price PB £22.99. EAN 978–1108456999.

First published in 1945. In this work the author seeks to correct the misinterpretation and incorrect labelling of Shelley's thought. While not neglecting Shelley as a poet, this book focuses on his contributions made to the general movement of political and philosophical thought of his era and by so doing his relevance to contemporary issues. This title will be of interest to students of literature.