Over the last decade, patient and public involvement (PPI) has become a requisite in applied health research. Some funding bodies demand explicit evidence of PPI, while others have made a commitment to developing PPI in the projects they fund. Despite being commonplace, there remains a dearth of engagement with the ethical and theoretical underpinnings of PPI processes and practices. More specifically, while there is a small (but growing) body of literature examining the effectiveness and impact of PPI, there has been (...) relatively little reflection on whether the concept/practice of PPI is internally coherent. Here, the authors unpick a ‘paradox’ within PPI, which highlights a tension between its moral and pragmatic motivations and its implementation. The authors argue that this ‘professionalisation paradox’ means we need to rethink the practice, and purpose, of PPI in research. (shrink)

In this incisive study Sarah Broadie gives an argued account of the main topics of Aristotle's ethics: eudaimonia, virtue, voluntary agency, practical reason, akrasia, pleasure, and the ethical status of theoria. She explores the sense of "eudaimonia," probes Aristotle's division of the soul and its virtues, and traces the ambiguities in "voluntary." Fresh light is shed on his comparison of practical wisdom with other kinds of knowledge, and a realistic account is developed of Aristototelian deliberation. The concept of pleasure (...) as value-judgment is expounded, and the problem of akrasia is argued to be less of a problem to Aristotle than to his modern interpreters. Showing that the theoretic ideal of Nicomachean Ethics X is in step with the earlier emphasis on practice, as well as with the doctrine of the Eudemian Ethics, this work makes a major contribution towards the understanding of Aristotle's ethics. (shrink)

Catherine Elgin has recently offered compatibility with autonomy as a plausible criterion for the epistemic virtues. This approach mixes elements of Kantianism with virtue theory. Sasha Mudd has criticized this combination on the grounds that it weakens the structure of Kantian autonomy and undermines its resources for responding to cultural relativism. Elgin’s more recent defense of the role of autonomy has taken a more Kantian turn. Here, I defend Elgin’s original claim, grounding it in a distinctively virtue theoretic account of (...) the development of virtues. Exploring how individuals develop their epistemic virtues within a social context, I show how these virtues can be grounded in both developmental and constitutive relational autonomy. I further argue that a virtue theoretic conception of autonomy should be substantive, not just procedural, and this limits concerns about relativism. (shrink)

The dead donor rule (DDR) has facilitated the saving of hundreds of thousands of lives. Recent advances in heart donation, however, have exposed how DDR has limited donation of all organs. We propose advancing the moment in the dying process at which death can be determined to increase substantially the supply of organs for transplantation. We justify this approach by identifying certain flaws in the Uniform Determination of Death Act and proposing a modification of that law that permits earlier procurement (...) of healthier organs in greater numbers. (shrink)

: We criticize a view of maternity that equates the natural with the genetic and biological and show how such a practice overdetermines the maternal body and the maternal experience for women who are mothers through adoption and ART (Assisted Reproductive Technologies). As an alternative, we propose a new framework designed to rethink maternal bodies through the lens of feminist embodiment. Feminist embodied maternity, as we call it, stresses the particularity of experience through subjective embodiment. A feminist embodied maternity emphasizes (...) the physical relations of the subjective lived-body rather than the genetic or biological connections. Instead of universalizing claims about the maternal body, embodied maternity looks to communicable experiences and empathetic understanding. (shrink)

Notions such as terroir and “Slow Food,” which originated in Mediterranean Europe, have emerged as buzzwords around the globe, becoming commonplace across Europe and economically important in the United States and Canada, Latin America, Africa, and Asia. Given the increased global prominence of terroir and regulatory frameworks like geographical indications, we argue that the associated conceptual tools have become more relevant to scholars working within the “alternative food networks” framework in the United States and United Kingdom. Specifically, the Local Agrifood (...) Systems perspective, first articulated in 1996 by French scholars, seeks to understand the relationship between the development of local food systems and specific territories. We review the empirical and theoretical literature that comprises each of these perspectives, highlighting three areas in which SYAL scholarship may be relevant to AFN researchers. First, while AFN scholars tend to understand the “local” in terms of positionality, in a distributionist sense, SYAL studies frame local food systems as anchored within particular territories. Second, SYAL research places significant emphasis on collectivity, both in terms of collective institutions and shared forms of knowledge and identity. Third, although both perspectives are framed in opposition of the industrialization of the global food system, AFN scholars focus more on alternative distribution schemes, while SYAL researchers favor territorially anchored structures. (shrink)

Background Researchers are required to determine whether a person has capacity to consent to a research study before they are able to participate. The Mental Capacity Act and accompanying Code of Practice for England and Wales provide some guidance on this process, but researchers have identified that it can be difficult to determine capacity to consent when a person has complex cognitive or communication needs. This study aimed to understand the experiences and opinions of researchers who recruit people with dementia (...) to research projects, to inform the future development of training resources. Methods A mixed method, cross-sectional, electronic survey was circulated via social media and research networks in England and Wales. The survey remained open for ten weeks and included open and closed questions exploring respondents’ confidence in determining capacity in the context of recruiting people with dementia to consent, their views on training and support they have experienced and their suggestions for future training and support needs. Results 60 respondents completed the survey from across England and Wales. Although 75% of respondents had experience of determining capacity to consent with people with dementia to research, only 13% rated themselves as feeling ‘very confident’ in this. Qualitative content analysis of open responses led to the generation of six themes, explaining researchers’ confidence, competence and future training needs in this area: (1) Researcher uncertainties, (2) Lack of time, (3) Balancing information complexity with accessibility, (4) Gatekeepers, (5) Existing enablers and (6) Envisioning future training. Conclusions Researchers would benefit from specific training in undertaking conversations around consent with people with dementia. People with dementia may have fluctuating capacity, and despite support from caregivers, researchers have little practical guidance on methods of determining a person’s ability to understand or appreciate the information they have provided during the consent process. Given the development of large complex trials within dementia research, there is an urgency to develop specific and practical guidance and training for researchers working with people with dementia and their families. (shrink)

This article discusses ways in which feminist scholars draw upon agency in relation to the complex subject matter of women's engagement in so-called `fundamentalist' movements. While postcolonial critiques generally reject the term `fundamentalism', and in particular the way it is linked to Islam, feminist perspectives have a vested interest in looking at contemporary developments in different religions from the perspective of women's lives. Against the patriarchal reputations of fundamentalist movements, feminist scholarship increasingly tends to emphasize women's agency, thereby effectively breaking (...) with widespread notions of `false consciousness'. After briefly discussing two such examples, the question is raised whether this emphasis on agency does not risk evacuating structural constraints in the construction of subjectivity, thus neutralizing the productive tension, at the heart of women's studies, between structure and agency. In conclusion, the article joins other calls for new ways of thinking about subjectivity. (shrink)

Face-to-face meetings are often preferred over other forms of communication because meeting in person provides the “richest” way to communicate. Face-to-face meetings are so rich because many ways of communicating are available to support mutual understanding. With the progress of digitization and driven by the need to reduce personal contact during the global pandemic, many face-to-face work meetings have been shifted to videoconferences. With webcams turned on, video calls come closest to the richness of face-to-face meetings. However, webcam use often (...) remains voluntary, and some participants choose not to turn their cameras on. In order to find ways to support webcam use—when desired—we analyzed how social norms in groups affect the decision to activate a webcam in a specific meeting. Based on an online survey with N = 333 participants, we found that social norms are related to an individual’s decision to turn on the webcam, even when controlling for group size. If the number of participants with activated webcams in a university meeting increased by 25%, it was 5.92 times more likely that an individual decided to turn their webcam on, too. Furthermore, 81.84% of respondents indicated they would turn on their webcam if participants in a meeting were explicitly asked to do so. The results demonstrate a strong relation between social norms and the decision to activate a webcam in online meetings. They build a basis for enhancing webcam use and enable a greater richness of communication in online meetings. (shrink)

Nonhuman primates represent the most significant extant species for comparative studies of cognition, including such complex phenomena as numerical competence, among others. Studies of numerical skills in monkeys and apes have a long, though somewhat sparse history, although questions for current empirical studies remain of great interest to several fields, including comparative, developmental, and cognitive psychology; anthropology; ethology; and philosophy, to name a few. In addition to demonstrated similarities in complex information processing, empirical studies of a variety of potential cognitive (...) limitations or constraints have provided insights into similarities and differences across the primate order, and continue to offer theoretical and pragmatic directions for future research. An historical overview of primate numerical studies is presented, as well as a summary of the 17‐year research history, including recent findings, of the Comparative Cognition Project at The Ohio State University Chimpanzee Center. Overall, the archival literature on number‐related skills and counting in nonhuman primates offers important implications for revising our thinking about comparative neuroanatomy, cross‐species (human/ape) cognitive similarities and differences, and the evolution of cognition represented by the primate continuum. (shrink)

Despite theorisation and consistent Pracademic (academics who are also practitioners) contributions to the concepts of truth-telling and decolonising epistemologies in the fields of activist research, there remains ongoing need for articulating the everyday praxis and positionality of empirical work. This paper considers the practice of two intercultural Australian-based practitioners’ examination of the ethical practices towards decolonising praxis as a contributor to third-space youth development which considers the space between participants. First Nations terminology is drawn on to explore the empirical nature (...) of third space theory (Bhabha) acknowledging the social construct of hybrid identities within individuals and communities’ personhood. Through exploring Indigenous inquiry as a contributor to third-space youth development, this paper argues that co-creation of knowledge amongst young people and practitioners considers a third space which can allow for deeper understandings of intercultural work and power dynamics. This article provides the opportunity to further explore a critical analysis of the challenges and possibilities of practitioners/pracademics working towards a decolonising journey which has implications for the ethics of youth work practice globally. (shrink)

In this article, we suggest that attending to the roles of heritage and territory could help reshape local food systems in the US: first, by incorporating more producer voices and visions into the conversation; and second, by considering more deeply the characteristics of the places where food is produced. Using the Wisconsin artisanal cheese network as a case study, we have traced how artisanal producers frame their collective heritage and links to their territory. They describe a heritage that includes a (...) cultivation of embedded, “situated” agricultural knowledge(s) and a commitment to specific quality practices as well as a connection to terroir—the specific ecologies and social contexts of their farm or region. We argue that their articulation of this heritage and terroir is both an emergent, ongoing process of adapting to changing market, cultural, and geographic conditions and an effort to recover valued traditions and practices and (re)connect to specific places. (shrink)

This essay looks at Edith Stein’s descriptions of the fundamental equality, yet distinct differences between women and men, and attempts to make clear the ontology underlying her claims. Stein’s position—although drawing from the general Aristotelian-Thomistic position—differs from Thomas Aquinas’s, and she understands gender as tied significantly to our form or soul. The particular way in which gender is “written into” our soul, however, differs from the way in which both our humanity and individuality are tied to our soul. Thus, Stein (...) wants to account for gender in a way that does not attribute it primarily to biology, nor does she understand gender as merely socially-constructed. Rather, gender is a significant part of our soul, yet not in such a way that either our common humanity orour distinct individuality are compromised. (shrink)

Star Trek is a successful popular cultural endeavor because it allows for exactly different kind of imaginative escapism, the possibility of joining in on an alternative narrative. In “The City on the Edge of Forever”, the Enterprise orbits a mysterious planet, where on its surface someone or something is causing temporal and spatial displacement. This chapter uses Romanticism as a philosophical gateway to the sublime experience that is the Guardian of Forever. The Guardian of Forever is the cause of the (...) spatial displacement and ripples in time that shake the Enterprise at the episode's beginning. Friedrich Nietzsche in his writings on Greek history, adopted the Romantic attitude toward the past by suggesting there are certain meaningful archetypes in the Greek past: in the context of “City on the Edge”, James T. Kirk represents the Tragic Hero, Spock the Apollonian figure, and McCoy the Dionysian figure. (shrink)

In Selfless Cinema?, Sarah Cooper maps out the power relations of making, and viewing, documentaries in ethical terms. The ethics of filmmaking are often examined in largely legalistic terms, dominated by issues of consent, responsibility, and participantse(tm) or film-makerse(tm) rights, but Cooper approaches four representative French film-makers e" Jean Rouch, Chris Marker, Raymond Depardon, and Agns Varda e" in a far less juridical way, drawing on the ethical philosophy of Emmanuel Levinas. She argues that, in spite of Levinase(tm)s iconoclastic, (...) anti-ocular thinking, his concept of visage is richly applicable to film, and especially to documentary. (shrink)

To isolate, analyze and explain their most basic commitments, theories of justice typically idealize. They assume for theoretical purposes, for example, that human beings possess far greater knowledge than they do, or that society's members strictly comply with just laws. Yet because it falsifies, idealization undermines the practical applicability of an ideal theory's principles. ;Although ideal theories are unsatisfactory as they stand, their fundamental principles may be invaluable in addressing our problems of justice. From such basic principles we may derive (...) intermediate ones that bridge the gap between ideal world and real, and allow us to determine what ideal theory demands in actual circumstances. ;Going beyond others who recognize the need, but themselves offer only ideal theories, I develop a set of these intermediate principles. I examine Kant's theory of justice as a paradigm, and identify problems it cannot address because they have their source in non-ideal features, including limited knowledge, imperfect will and preexisting social injustice. I then appeal to a modified version of the perspective of the ideal citizen that Kant employs in the Rechtslehre. This modified perspective enables us to articulate principles that give effect to Kant's universal law of justice and categorical imperative in non-ideal circumstances. Illustrating its use in addressing issues such as prison reform and exclusionary zoning, I argue that augmented ideal theory can play a crucial role in our pursuit of social justice. (shrink)

The essays in this volume all ask what it means for human beings to be embodied as desiring creatures—and perhaps still more piercingly, what it means for a philosopher to be embodied. In taking up this challenge via phenomenology, psychoanalysis, hermeneutics, and the philosophy of literature, the volume questions the orthodoxies not only of Western metaphysics but even of the phenomenological tradition itself. We miss much that has philosophical import when we exclude the somatic aspects of human life, and it (...) is therefore the philosopher’s duty now to rediscover the meaning inherent in desire, emotion, and passion—without letting the biases of any tradition determine in advance the meaning that reveals itself in embodied desire. Continental philosophers have already done much to challenge binary oppositions, and this volume sets out a new challenge: we must now also question the dichotomy between being at home and being alienated. Alterity is not simply something out there, separate from myself; rather, it penetrates me through and through, even in my corporeal experience. My body is both my own and other; I am other than myself and therefore other than my body. Additionally, this book is a conversation, not a presentation of a new orthodoxy. Thus, the hope is that these essays will open the way for further dialogue that will continue to radically rethink our understanding of embodied desire. Gathered together here are twelve essays that address these issues from deeply interrelated albeit unique perspectives from within the field. (shrink)

After a brief summary of Mackenzie's major claims, I offer questions to promote ongoing conversation, most especially regarding they‐ and we‐narratives.

In their 1978 paper, psychologists David Premack and Guy Woodruff posed the question, “Does the chimpanzee have a theory of mind?” They treated this question as interchangeable with the inquiry, “Does a chimpanzee make inferences about another individual, in any degree or kind?” Here, we offer an alternative way of thinking about this issue, positing that while chimpanzees may not possess a theory of mind in the strict sense, we ought to think of them as enactive perceivers of practical and (...) social affordances. As such, we reframe the question: “Are chimpanzees socially enactive?”. (shrink)

Thomas Szasz has wrestled with the following question: Does mental illness even exist? Here, I sketch two provocative papers by Szasz and detail his reasons for criticizing the concept ‘mental illness.’ I will proceed to highlight where I think Szasz’s writing is philosophically dubious, despite its role in forcing us to think critically about ‘mental illness.’ I will conclude that his argument is best left behind as an antiquated take on neurodivergence. Finally, I will propose what I think is a (...) more promising alternative to Szasz’s view that there is a myth around mental illness. There is a myth indeed, and it involves what is often meant by ‘mental.’ With new developments in embodied cognition, I will ask us to revisit the concept of ‘mental illness,’ to correctly diagnose the problematic myth that must be confronted by the psychiatric community, and to explore what the myth of the mental means for neurodivergence. (shrink)

This article responds to the critique of productivist essentialism, which is the view that the human is the productive animal, made against Marx. The author argues against this view and holds that Marx introduces a dialectical account of human essence with the notion of species being in the 1844 Manuscripts, which he then develops in The German Idology. This account of essence includes a static and dynamic moment, and in capitalism, the dialectic of essence has resulted in the appearance of (...) the human as the productive animal. Finally, the author argues that Marx’s critique of production and dialectical account of human essence allow us to better think the possibilities for a post-work future. (shrink)

In this thesis I determine what is required in an account of money. I compare John’s Searle’s idea of institutions, as ontologically subjective, to Francesco Guala’s idea of an institution as a functional, rule-based equilibrium. I find both, as accounts of money, to be inadequate on their own. In response, I develop a new account of money which has functional components akin to Guala’s but with the addition of intentionality. This adds mind-dependence back into the account of money but, if (...) Khalidi’s theory of social kinds is correct, my account of money is still open to scientific investigation, because it might be kind of natural. (shrink)

I denne artikel undersøges kroniske patienters beslutninger om forsøgsdeltagelse og betydningen af deltagerinformation. På baggrund af et års feltarbejde på fire danske forskningsklinikker argumenterer jeg for, at de observerede patienter opererer efter andre logikker, når de tager beslutninger om at deltage i kliniske forsøg, end hvad der antages i den gældende forskningsetiske regulering. Feltarbejdet fulgte et klinisk lægemiddelforsøg og inkluderede observationer af forsøgskonsultationer; interviews med investigatorer, projektsygeplejersker, forsøgsdeltagere og virksomhedsrepræsentanter; samt en mindre spørgeskemaundersøgelse blandt de danske forsøgsdeltagere. Resultaterne indikerer, at (...) for en gruppe af erfarne forsøgsdeltagere handler beslutningerne om forsøgsdeltagelse ikke om forsøget i sig selv, men om at opretholde en nær relation til forskningspersonalet. Disse patienter orienterer sig ikke efter deltagerinformation, men i forhold til tillidsrelationer. De agerer ikke som autonome individer, men oplever, at de er afhængige af sundhedssystemet. De udtrykker altruistiske motiver, men håber samtidig, at forsøgsdeltagelse vil give dem bedre helbredskontrol. For dem er forsøgsdeltagelse blevet en måde at leve med kronisk sygdom. Mulige implikationer af denne situation diskuteres, idet det understreges, at tillidsfulde relationer er en forudsætning både for god behandling og god forskning, men at de tætte relationer samtidig kan bevirke, at patienter bliver mindre kritiske, i forhold til hvilke forsøg de accepterer at deltage i, og at en bevidsthed om forsøgsrelaterede risici fortrænges fra forsøgssituationen.Nøgleord: informeret samtykke, deltagerinformation, deltagermotivation, kliniske forsøg, kronisk sygdom, DanmarkEnglish summary: Informed consent in clinical trials: technicalities, trust and intimate relationshipsThis article explores decisions about clinical trial participation in a group of patients with chronic conditions, focusing especially on motivation for trial participation and trial information. Based on ethnographic research in four Danish hospitals in conjunction with a clinical drug trial, I argue that these patients’ decisions follow logics other than those anticipated in research ethics regulations. I build on observations, interviews with physician-investigators, project nurses, patient-participants and trial sponsors, and a survey of the participants. The results indicate that for a group of experienced trial participants, trial information plays a very limited role because their decisions do not concern the trial per se but the sustainment of a close relationship with the research staff. They do not act as autonomous individuals weighing pros and cons based on the written information they receive. Rather, they feel dependent on the healthcare system and navigate in trust relations. For them, trial participation has become a way of living with chronic disease. I discuss implications of this situation underlining that trustful relationships constitute a precondition for high quality chronic care and research, yet the social dynamics may also lead patients to pay less attention to risks associated with trial participation. (shrink)

Tips and tricks for capturing your canine's personality withevery click of the camera Simply snapping a picture may not capture the playfulness orspontaneity of a dog. Knowing what kind of equipment, angle, andcomposition to use while photographing a dog can make all thedifference in the character captured in the photo. DogPhotography For Dummies gives you practical and fun guidancefor capturing your dog's personality and turning ordinary shotsinto priceless memories that will last a lifetime. Covering all the latest and greatest gadgets (...) and accessoriesavailable to capture and alter photos of your favorite pooch,Dog Photography For Dummies offers techniques that amateursand intermediates alike can use to improve their photographyskills. This hands-on guide features great examples of dogportraiture, plus tons of ideas for fun new places to pose yourfurry friend, such as the beach, the park, the car, in the snow,and more. Detailed discussions of color versus black-and-white, indoorsversus outdoors, composition, and capturing movement Advice on how to get a dog to sit still Considerations for photographing a shy dog who is scared of thecamera Guidance on making the most of natural light Tips for photographing dogs with black coats How to photograph people and dogs together Whether for decorating, memories, or holiday cards, DogPhotography For Dummies makes it easy to capture the best ofyour four-legged friend. (shrink)

Articulating heterosexualism is not to supplicate for gays but to better understand consequences of institutionalizing a particular relationship between men and women. In this essay, Hoagland takes up the claim from a number of women of color that women are not all the same gender.