Background Requirements for organ donation after cardiac or imminent death have been introduced to address the transplantable organs shortage in the United States. Organ procurement organizations (OPOs) increasingly use the Internet for organ donation consent. Methods An analysis of OPO Web sites available to the public for enrollment and consent for organ donation. The Web sites and consent forms were examined for the minimal information recommended by the United States Department of Health and Human Services for informed consent. Content scores (...) were calculated as percentages of data elements in four information categories: donor knowledge, donor consent reinforcement, donation promotion, and informed consent. Results There were 60 Web sites for organ donation enrollment serving the 52 states. The median percent (10 percentile-90 percentile) content scores of the Web sites for donor knowledge, donor consent reinforcement, and donation promotion were 33% (20–47), 79% (57–86), and 75% (50–100), respectively. The informed consent score was 0% (0–33). The content scores for donor knowledge and informed consent were significantly lower than donor consent reinforcement and donation promotion for all Web sites (P < .05). The content scores for the four categories were similar among the 11 regions of the United Network for Organ Sharing. Conclusion The Web sites and consent forms for public enrollment in organ donation do not fulfill the necessary requirements for informed consent. The Web sites predominantly provide positive reinforcement and promotional information rather than the transparent disclosure of organ donation process. Independent regulatory oversight is essential to ensure that Internet enrollment for organ donation complies with legal and ethical standards for informed consent. (shrink)

Business Ethics, the Environment & Responsibility, Volume 31, Issue 2, Page 398-418, April 2022.

This paper engages Alex Dubilet’s _The Self-Emptying Subject: Kenosis and Immanence, Medieval to Modern_ and his account of immanence and kenosis as exhibited in his reading of Hegel’s concept of _Entäußerung_ [externalization]. Specifically, I focus on the “problematic of desubjectivation” that centers Dubilet’s critique of transcendence and its relationship to subjection and subjectivity. I reconsider the relationship made between this problematic, the ethics of kenosis, and the concept of immanence so as to demonstrate the ways in which Dubilet attempts to (...) depart from transcendence, subjectivity, and their concomitant ethics. In particular, I consider his reading of Hegel’s concept of _Entäußerung_ and its similarities to the Young Hegelians’ understanding of this concept. My reading of Dubilet suggests that while he seeks to depart from transcendence, he reintroduces transcendence through the “problematic of desubjectivation” and its relationship to kenosis. In conclusion, I question the philosophical import of immanence in contemporary critical inquiry and why its conceptualization is often positioned in opposition to transcendence. (shrink)

La "technologie" est au coeur de notre vie sans que souvent nous en ayons conscience. D'où la question de l'unité de cette technologie à travers de multiples disciplines. C'est à cette interrogation que tentent de répondre les échanges internationaux organisés par l'Université libano-française de Tripoli. Trois notions-clefs sont au coeur du débat : la reconnaissance de la sphère technique dans la culture ; l'existence de mécanismes de classification et normalisation d'un savoir et d'un langage spécifique grâce à la culture et (...) la validité d'un modèle "mondialiste" ou systématique contemporain. On s'interroge sur le Sens des parts mécanique, théorique et pratique de notre civilisation ainsi que sur les moyens dont elle dispose pour créer une nouveauté qui préserve les intérêts de tous. Tel est l'objet de cet ouvrage : aider un individu aujourd'hui et demain à mieux s'adapter à cet ordre "technologique" dont les implications culturelles sont immenses, abordées ici sans préjugés, de manière plurielle, rationnelle et démocratique. (shrink)

This study linked background TV and socioeconomic status to minority children’s Persian vocabulary development. To this end, 80 Iranian preschool children from two minority groups of Arabs and Turks were selected using stratified random sampling. They were simultaneous bilinguals, i.e., their mother tongue was either Arabic or Azari and their first language was Persian. Language sample analysis was used to measure vocabulary development through a 15-min interview by language experts. The LSA measures included total number of utterances, total number of (...) words, total number of new words, and mean length of utterance. A series of independent-samples t test, paired-samples t test, and repeated measures MANOVA tests were ran to examine data. Results showed significant improvements in children’s vocabulary scores from pretest to posttest for all children. In addition, high-SES children scored higher on the vocabulary measures in pretest and posttest. Moreover, background TV was associated with higher means in the TNW and the NDW in groups. The researchers concluded that background TV may be related to higher vocabulary scores in low-SES families as it may compensate for some linguistics gaps in these families including lower amount of child-parent interaction, play, and parents’ level of literacy. (shrink)

The determination of death by neurological criteria remains controversial scientifically, culturally, and legally, worldwide. In the United Kingdom, although the determination of death by neurological criteria is not legally codified, the Code of Practice of the Academy of Medical Royal Colleges is customarily used for neurological death determination and treatment withdrawal. Unlike some states in the US, however, there are no provisions under the law requiring accommodation of and respect for residents' religious rights and commitments when secular conceptions of death (...) based on medical codes and practices conflict with a traditional concept well-grounded in religious and cultural values and practices. In this article, we analyse the medical, ethical, and legal issues that were generated by the recent judgement of the High Court of England and Wales in Re: A [2015] EWHC 443. Mechanical ventilation was withdrawn in this case despite parental religious objection to a determination of death based on the code of practice. We outline contemporary evidence that has refuted the reliability of tests of brainstem function to ascertain the two conjunctive clinical criteria for the determination of death that are stipulated in the code of practice: irreversible loss of capacity for consciousness and somatic integration of bodily biological functions. We argue that: the tests of brainstem function were not properly undertaken in this case; the two conjunctive clinical criteria set forth in the code of practice cannot be reliably confirmed by these tests in any event; and absent authentication of the clinical criteria of death, the code of practice wrongly invokes a secular definition of death based on the loss of personhood. Consequently, the moral obligation of a pluralistic society to honor and respect diverse religious convictions to the greatest extent possible is being violated. Re A is contrasted with the US case of Jahi McMath in which the court accommodated parental religious objection to the determination of neurological death codified in the Uniform Determination of Death Act. We conclude that the legal system in the United Kingdom should not favour a secular definition of death over a definition of death that is respectful of religious values about the inviolability and sanctity of life. We recommend the legal recognition of religious accommodation in death determination to facilitate cultural sensitivity and compassionate care to patients and families in a pluralistic society. (shrink)

In this article, we propose an initial formal model of computationalism based on mathematical relations between cognition and computation. More specifically, based on a set of cognitive constituents as a domain, and a set of computational implementations as a range, we define two relations of transformation over these sets. Moreover, we define the principles of implementability, describability, and phenomena correspondence, and we conjecture that full computationalism does not hold since these principles are not fulfilled. Particularly, many cognitively-tied phenomena fail to (...) respect the describability principle which is necessary for representing a cognitive state by a computational state. (shrink)

On literary works, art, and politics related to philosophy.

Salem, Sara. “Feminismo islámico, interseccionalidad y decolonialidad.” Tábula Rasa 21 (2014): 111-122.

In addition to opening a fertile field for inquiry in analytical social epistemology, Miranda Fricker’s work has provided powerful conceptual tools that merge descriptive capacity and political potency. For this reason, over the last fifteen years, the conceptual repertoire introduced by the author has been well received in both academic and political arenas. At times, the concepts of both testimonial and hermeneutical injustice acquire excessive dimensions in the literature, and this undermines, on the one hand, their analytical precision and, on (...) the other, their usefulness. In this paper I argue against Fricker’s structural parallelism thesis and defend an independent treatment of each of these concepts. On this basis, to counteract the hyperinflation of the concept of hermeneutic injustice, I proceed with an exercise of conceptual precision. To this end, I identify the conditions that make hermeneutic injustice both unjust and hermeneutic. Finally, I present theoretical and practical reasons to encourage the rigorous use of these concepts. (shrink)

The purpose of this study was to know the relationship between student perception towards mathematics teacher with mathematics academic performace. The population of the study were all students of class VIII SMPN 8 Cirebon in the academic year 2014/2015, with the number of students 287 people. The sampling technique used proportional random sampling, and the sample size was 56 students. Data collection techniques used: 1) Questionnaire of Perceptions towards Mathematics teacher, and 2) The results of student mathematics learning test. The (...) result of correlation analysis show no significant correlation between students perception towards teacher and academic performance (r= .155, p= .254). (shrink)

In assisted dying, the end-of-life trajectory is shortened to relieve unbearable suffering. Unbearable suffering is defined broadly enough to include cognitive (early dementia), psychosocial or existential distress. It can include old-age afflictions that are neither life-threatening nor fatal in the “vulnerable elderly”. The voluntary refusal of food and fluids (VRFF) combined with continuous deep sedation (CDS) for assisted dying is legal. Scientific understanding of awareness of internal and external nociceptive stimuli under CDS is rudimentary. CDS may blunt the wakefulness component (...) of human consciousness without eradicating internal affective awareness of thirst and hunger. Patients may suffer because of the slow dying process following dehydration and starvation. The difficulty to adequately control distress, without bringing the dying process to a rapid conclusion by lethal pharmacological interventions, can cause feelings of guilt among hospice and medical staff. Furthermore, the double-effect principle is not applicable in these situations because the primary objective of VRFF is to hasten death. Legal and societal debate should focus on sharpening the boundaries between assisted dying and palliative care. This separation is necessary to: 1) uphold trust in the patient-phyician relationship, and 2) preserve integrity and ethics of the medical profession. (shrink)

The present study used quantitative and qualitative measures to examine Iranian applied linguists’ (mis-) conceptions of ethical issues in research. For this purpose, one hundred and twelve applied linguists completed a research ethics questionnaire constructed and validated by the researchers. In the follow-up qualitative phase, 15 applied linguists who were faculty members participated in semi-instructed interviews. Data were analyzed using exploratory factors analyses for the first phase and theme analyses for the second phase. Quantitative results showed that the most important (...) misconceptions among Iranian applied linguists lingered on working with data (data collection and data analyses). For example, removing an outlier was a prevalent act conducted by applied linguists in the present study. Teachers using their students as participants of their own research as well as how they treated those students after a study were other controversial issues. The qualitative results revealed several themes including _lack of knowledge, conflict with real-world practices, a product-oriented approach to education and a publish or perish mentality_ as the reasons for misconceptions of ethics in applied linguistics among Iranian researchers. On general terms, there was an implicit agreement regarding the lack of training on research ethics among Iranian applied linguists. (shrink)

This study investigates whether financial performance is affected by corporate violations of laws and regulations. In a sample of 128 publicly traded banks that were subject to enforcement actions by US regulatory authorities over a 20-year period, we observed a significant negative market reaction pursuant to the violations. However, the market reaction did not vary meaningfully in accordance with the severity or repetitiveness of the violation. The results of this study are in conformity with previous research on industries other than (...) banking, notably with regard to negative market reaction. This confirms that shareholders in the banking industry react in a manner considerably similar to their counterparts in other industries. (shrink)

This study empirically examines the relationship between wide-ranging board diversity and the quality of corporate social responsibility disclosure variables in Malaysia. We extend prior literature covering broader dimensions of board diversity and their impact on CSR after controlling for board and audit committee characteristics. Using 200 listed firms in Bursa Malaysia during 2009–2013 and applying both OLS and 2SLS instrumental variables approaches, we document significant positive effect of board education level and board tenure diversity on the quality of CSR disclosure. (...) Further analysis using robust regression also shows positive association between gender diversity and CSR disclosure. Our findings also demonstrate that the quality of CSR disclosure is significantly negatively associated with board age and nationality diversity. These results remain consistent with using alternative measures for board diversity, and characteristics for board of director and audit committees as well as split samples between large and small firms. Additional tests exhibit complementary relationship of education level and nationality with gender, while substitutive relationship of age and tenure with gender in influencing CSR. These findings provide useful insights into the policy makers in setting regulations in respect of board diversity in Malaysia and other emerging economies in the Asian region. Our evidence is also useful for listed companies in setting the criteria to identify directors who can support their strategic decisions. (shrink)

This article examines ḥikma as it was practiced by Ṣadr al-Dīn Shīrāzī, or Mullā Ṣadrā (d. 1640), in explaining the connection between the divine names and the attributes of God. This is done via a translation of the fourth part of his al-Maẓāhir al-ilāhiyya fī asrār al-ʿulūm al-kamāliyya [The loci of divine manifestations in the secrets of the knowledge of perfection]. Ḥikma, philosophy, as it is defined here, is the combination of rational demonstrations and spiritual unveiling. Shīrāzī’s philosophy is a (...) synthesis of Ibn ʿArabī’s school of metaphysical unveiling, the Ishrāqī school led by Suhrawardī, and the rational school of the Peripatetics. The text is translated here for the first time, and includes annotations. (shrink)

Background Bioethics and law distinguish between the practices of "physician-assisted death" and "allowing the patient to die." Discussion Advances in biotechnology have allowed medical devices to be used as destination therapy that are designed for the permanent support of cardiac function and/or respiration after irreversible loss of these spontaneous vital functions. For permanent support of cardiac function, single ventricle or biventricular mechanical assist devices and total artificial hearts are implanted in the body. Mechanical ventilators extrinsic to the body are used (...) for permanent support of respiration. Clinical studies have shown that destination therapy with ventricular assist devices improves patient survival compared to medical management, but at the cost of a substantial alteration in end-of-life trajectories. The moral and legal assessment of the appropriateness and permissibility of complying with a patient's request to electively discontinue destination therapy in a life-terminating act in non-futile situations has generated controversy. Some argue that complying with this request is ethically justified because patients have the right to request withdrawal of unwanted treatment and be allowed to die of preexisting disease. Other commentators reject the argument that acceding to an elective request for death by discontinuing destination therapy is 'allowing a patient to die' because of serious flaws in interpreting the intention, causation, and moral responsibility of the ensuing death. Summary Destination therapy with cardiac and/or ventilatory medical devices replaces native physiological functions and successfully treats a preexisting disease. We posit that discontinuing cardiac and/or ventilatory support at the request of a patient or surrogate can be viewed as allowing the patient to die if--and only if--concurrent lethal pathophysiological conditions are present that are unrelated to those functions already supported by medical devices in destination therapy. In all other cases, compliance with a patient's request constitutes physician-assisted death because of the pathophysiology induced by the turning off of these medical devices, as well as the intention, causation, and moral responsibility of the ensuing death. The distinction between allowing the patient to die and physician-assisted death is pivotal to the moral and legal status of elective requests for death by discontinuing destination cardiac and/or ventilatory medical devices in patients who are not imminently dying. This distinction also represents essential information that must be disclosed to patients and surrogates in advance of consent to this type of therapy. (shrink)

My aim in this paper is to show that the reasons-responsiveness theory of rationality fails to explain the intuitive irrationality of practical akrasia. First, I argue that the best explanation for the distinction between acting in accordance with a normative reason and responding to that reason involves appealing to one’s competence or knowledge about how to respond to that reason. Second, one might possess practical competence to respond to her decisive practical reasons to act, without having the parallel theoretical competence (...) to believe rationally, through deliberation, that she has decisive reasons to perform that action. Third, if possessing a normative reason is a matter of having the ability to respond to that reason, and responding to a reason is grounded in facts about one’s competence about how to respond to that reason, then the mismatch between one’s practical and theoretical competences may give rise to a normative mismatch between one’s possessed reasons for action and one’s possessed reasons for one's normative beliefs. There would be possible situations in which one possesses decisive reasons to perform an action ⱷ but lacks sufficient reasons to believe that she has decisive reasons to ⱷ. In those situations, the reasons-responsiveness theory requires one to act against her normative judgment about what she ought to do. I conclude by considering whether it could be rationally permissible to act against one’s own normative judgment about what one ought to do if one’s reasons for action diverge from one’s reasons for a certain judgment about what one ought to do. (shrink)

Islamic political thought has long been concerned with the abuses of tyranny. To contemporary Islamists, the tyrant is the ruler who adopts foreign ideas opposed to the original values of Islam. This sentiment is sometimes coupled with calls for revolutionary violence, a view popularized by the Egyptian Islamist Sayyid Qutb.1 While to some modern Islamists tyrannical rule signifies encroaching Western hegemony, its premodern use was less geographically specific. The Prophet Muhammad had simply stipulated that the "best struggle is a word (...) of truth [spoken] to a tyrannical [or unjust] ruler".2 This maxim alone does not describe the tyrant's cultural and religious... (shrink)

Ce travail de recherche porte sur des erreurs phonétiques dans l’apprentissage d’une langue étrangère, plus particulièrement la production de deux groupes consonantiques /bR/ et /kR/ du français langue étrangère (FLE) par 6 apprenants iraniens au niveau débutant (A1). L’objectif est d’analyser et d’expliquer les écarts de prononciation engendrés par ces deux groupes consonantiques. Pour cela, les productions de 8 mots français par 6 apprenants de première année de la langue française ont été enregistrées et analysées. Les résultats de cette étude (...) montrent que la prononciation de ces groupes consonantiques est erronée et deux éléments causent cette difficulté : les caractéristiques acoustiques des composants du groupe consonantique et la position du groupe dans le mot. Nous avons observé cinq causes d’erreur : le non relâchement de la consonne, le découpage du groupe, l’ajout d’un son vocoïde, l’élision d’une des composantes du groupe et la substitution d’une consonne du groupe par u... (shrink)

This level of using ICT in education from the perspectives of school principals was explored in this investigation. The descriptive analytical method was used as the methodology and the study sample included 183 school principals, who were selected randomly from different public schools in the UAE. A questionnaire was prepared and formulated in its initial form, which consists of (58) items distributed among the six dimensions The findings found that school principals agreed on the importance of using ICT for the (...) management of school examinations and results, as it came in first place with a percentage of 81.28, which is a high degree. The findings also showed that school principals have similar views on the use of ICT in school administration regardless of their gender. Both male and female principals use ICT tools and think it is important in school administration. (shrink)

This paper aims to provide insights into the Malaysian newspaper reports on apostasy cases in the country. Being a Muslim country with multi-religions, apostasy is highly sensitive hence any issues related to apostasy need to be carefully managed. Four keywords were used to identify newspaper reports for the analysis. Two newspaper reports met the selection criteria and were analysed using a discourse analysis approach focusing on Grammatical Analysis, Macrostructures, and Rhetorical Structures. The analysis reveals that the report in New Straits (...) Times, which is the right-wing newspaper, carries the voice of anti-apostate and disapproves the act of renouncing Islam. On the other hand, the report in The Malay Mail, which is the left-wing newspaper, carries the voice of pro-apostate. By deconstructing the newspaper reports, this paper contributes to the understanding of the agendas that have been subtly set in the news. This paper concludes that the two reports have been strategically constructed to serve the interests and promote the ideology of the two competing groups in the country, thus creating a balance in the multi-religious context. (shrink)

This study was carried out to investigate the roles of epistemic beliefs and writing self-efficacy in predicting second language writing anxiety among learners of English as a foreign language. To this end, three validated scales were distributed among 240 EFL students. They were asked to complete the questionnaires during their regular courses. A structural equation modeling approach was utilized to analyze the hypothesized SEM model and the causal paths among the constructs. The direct and indirect path analyses of the hypothesized (...) model indicated that EBs and WSE accounted for 43% of the variance in L2WA. Although both constructs had a significant effect on L2WA, EBs turned out to be a robust predictor of increasing L2WA. Notably, it was revealed that learners’ EBs directly and significantly influenced their L2WA. Besides, the results indicated that WSE had a unique effect in reducing L2WA. More precisely, students who had a higher level of EBs seemed to have a greater L2WA, and those who had a higher level of WSE experienced less L2WA. The findings of this explanatory study suggest that L2 teachers and material developers should pay serious attention to the Students’ cognitive and affective variables as they were known to be significant factors in influencing L2WA. (shrink)

A number of advocates for TQM contend that firms who embrace TQM will automatically and naturally act in ethically sound ways (Roth, 1993; Pace, 1999; Steeples, 1994). This claim is a strong one. This paper assesses its truth. We consider the many ways in which quality initiatives, if undertaken in good faith, can foster sound ethics. We explore the various ways in which TQM presupposes, and thus cannot engender, ethical behavior. And, finally, we identify some of the ethical blind spots (...) in quality initiatives and TQM. We propose that if TQM is undertaken by thoughtful people who take steps to correct its ethical blind spots and who understand the need for an ethical underpinning, then TQM and ethics will prove mutually reinforcing. (shrink)

Islam and End-of-Life Practices in Organ Donation for Transplantation: New Questions and Serious Sociocultural Consequences Content Type Journal Article Pages 175-205 DOI 10.1007/s10730-009-9095-8 Authors Mohamed Y. Rady, Mayo Clinic Hospital in Phoenix 5777 East Mayo Boulevard Phoenix Arizona USA 85054 Joseph L. Verheijde, Mayo Clinic College of Medicine 5777 East Mayo Boulevard Phoenix Arizona USA 85054 Muna S. Ali, Arizona State University Phoenix Arizona USA Journal HEC Forum Online ISSN 1572-8498 Print ISSN 0956-2737 Journal Volume Volume 21 Journal Issue (...) Volume 21, Number 2. (shrink)

ABSTRACT Malaysia’s 13th general election in 2013 was the final election where the longest-serving elected government in the world, Barisan Nasional, regained power, before it was ousted after over six decades of authoritarian rule in 2018. In a country that practises parliamentary democracy but simultaneously observed close cooperation between the then ruling coalition and the mainstream press, this paper shows the micro-politics of the driving force of the coalition, United Malays National Organisation – specifically, how anxiety regarding the maintenance of (...) their privileged and empowered Malay position dominated the national narrative during the GE13 campaign. Focusing on editorial journalistic genres in four paid-for Malay-language newspapers, I illustrate the typical politics of fear that characterises much of Malaysian right-wing rhetoric – the ways in which racial and religion issues are provoked. The in-depth representational analysis, via the Discourse-historical Approach’s nomination and predication strategies, also suggests the normalisation of nationalistic and racist rhetoric, which primarily works with ‘fear’: fear of change, of loss of privilege, of the future, of other races; in principle, almost anything can be constructed as a threat to ‘Us’, an imagined homogenous people inside a well-protected territory through the discursive construction of such in-groups and out-groups. (shrink)

La elaboración del dossier temático de la revista Aletheia sobre memorias y experiencias de identidades de género disidentes en Argentina se constituyó en una oportunidad para cuestionar y evidenciar problemáticas que recorren y estructuran los debates sobre el tema en el ámbito académico-universitario. Dichas reflexiones se encuentran condensadas en este escrito, un texto dialógico producto de un intercambio reflexivo entre el autor y las coordinadoras del dossier. Blas es profesor de filosofía, becario doctoral (CONICET) y activista de Derechos Humanos. Es (...) docente de Gnoseología de la Facultad de Filosofía y Letras de la Universidad de Buenos Aires y co-coordinador de la Cátedra Libre de Estudios Trans. Este escrito es el producto de conversaciones conjuntas, entrecortadas, pausadas, de preguntas y respuestas construidas a lo largo de los últimos meses. Un diálogo que pretende abrir nuevos interrogantes sobre cómo entendemos, construimos y habitamos los espacios académico-universitarios, qué estrategias se despliegan en la pretendida búsqueda de políticas de inclusión y cuáles son sus limitaciones de las que no podemos escapar. Ello nos conduce a repensar cómo entendemos el género y las identidades. (shrink)

End-of-life organ donation is controversial in Islam. The controversy stems from: scientifically flawed medical criteria of death determination; invasive perimortem procedures for preserving transplantable organs; and incomplete disclosure of information to consenting donors and families. Data from a survey of Muslims residing in Western countries have shown that the interpretation of religious scriptures and advice of faith leaders were major barriers to willingness for organ donation. Transplant advocates have proposed corrective interventions: reinterpreting religious scriptures, reeducating faith leaders, and utilizing media (...) campaigns to overcome religious barriers in Muslim communities. This proposal disregards the intensifying scientific, legal, and ethical controversies in Western societies about the medical criteria of death determination in donors. It would also violate the dignity and inviolability of human life which are pertinent values incorporated in the Islamic moral code. Reinterpreting religious scriptures to serve the utilitarian objectives of a controversial end-of-life practice, perceived to be socially desirable, transgresses the Islamic moral code. It may also have deleterious practical consequences, as donors can suffer harm before death. The negative normative consequences of utilitarian secular moral reasoning reset the Islamic moral code upholding the sanctity and dignity of human life. (shrink)

Organ donation after cardiac or circulatory death (DCD) has been introduced to increase the supply of transplantable organs. In this paper, we argue that the recovery of viable organs useful for transplantation in DCD is not compatible with the dead donor rule and we explain the consequential ethical and legal ramifications. We also outline serious deficiencies in the current consent process for DCD with respect to disclosure of necessary elements for voluntary informed decision making and respect for the donor's autonomy. (...) We compare two alternative proposals for increasing organ donation consent in society: presumed consent and mandated choice. We conclude that proceeding with the recovery of transplantable organs from decedents requires a paradigm change in the ethics of organ donation. The paradigm change to ensure the legitimacy of DCD practice must include: (1) societal agreement on abandonment of the dead donor rule, (2) legislative revisions reflecting abandonment of the dead donor rule, and (3) requirement of mandated choice to facilitate individual participation in organ donation and to ensure that decisions to participate are made in compliance with the societal values of respect for autonomy and self-determination. (shrink)

Mass media campaigns are widely and successfully used to change health decisions and behaviors for better or for worse in society. In the United States, media campaigns have been launched at local offices of the states’ department of motor vehicles to promote citizens’ willingness to organ donation and donor registration. We analyze interventional studies of multimedia communication campaigns to encourage organ-donor registration at local offices of states’ department of motor vehicles. The media campaigns include the use of multifaceted communication tools (...) and provide training to desk clerks in the use of scripted messages for the purpose of optimizing enrollment in organ-donor registries. Scripted messages are communicated to customers through mass audiovisual entertainment media, print materials and interpersonal interaction at the offices of departments of motor vehicles. These campaigns give rise to three serious concerns: (1) bias in communicating information with scripted messages without verification of the scientific accuracy of information, (2) the provision of misinformation to future donors that may result in them suffering unintended consequences from consenting to medical procedures before death (e.g, organ preservation and suitability for transplantation), and (3) the unmanaged conflict of interests for organizations charged with implementing these campaigns, (i.e, dual advocacy for transplant recipients and donors). We conclude the following: (1) media campaigns about healthcare should communicate accurate information to the general public and disclose factual materials with the least amount of bias; (2) conflicting interests in media campaigns should be managed with full public transparency; (3) media campaigns should disclose the practical implications of procurement as well as acknowledge the medical, legal, and religious controversies of determining death in organ donation; (4) organ-donor registration must satisfy the criteria of informed consent; (5) media campaigns should serve as a means of public education about organ donation and should not be a form of propaganda. (shrink)

The Royal College of Physicians of London published the 2013 national clinical guidelines on prolonged disorders of consciousness in vegetative and minimally conscious states. The guidelines acknowledge the rapidly advancing neuroscientific research and evolving therapeutic modalities in PDOC. However, the guidelines state that end-of-life decisions should be made for patients who do not improve with neurorehabilitation within a finite period, and they recommend withdrawal of clinically assisted nutrition and hydration . This withdrawal is deemed necessary because patients in PDOC can (...) survive for years with continuation of CANH, even when a ceiling on medical care has been imposed, i.e., withholding new treatment such as cardiopulmonary resuscitation for acute life-threatening illness. The end-of-life care pathway is centered on a staged escalation of medications, including sedatives, opioids, barbiturates, and general anesthesia, concurrent with withdrawal of CANH. Agitation and distress may last from several days to weeks because of the slow dying process from starvation and dehydration. The potential problems of this end-of-life care pathway are similar to those of the Liverpool Care Pathway. After an independent review in 2013, the Department of Health discontinued the Liverpool Care pathway in England. The guidelines assert that clinicians, supported by court decisions, have become the final authority in nonconsensual withdrawal of CANH on the basis of “best interests” rationale. We posit that these guidelines lack high-quality evidence supporting: 1) treatment futility of CANH, 2) reliability of distress assessment from starvation and dehydration, 3) efficacy of pharmacologic control of this distress, and 4) proximate causation of death. Finally, we express concerns about the utilitarian-based assessment of what constitutes a person’s best interests. We are disturbed by the level and the role of medical authoritarianism institutionalized by these national guidelines when deciding on the worthiness of life in PDOC. We conclude that these guidelines are not only harmful to patients and families, but they represent the means of nonconsensual euthanasia. The latter would constitute a gross violation of the public’s trust in the integrity of the medical profession. (shrink)

We respond to Morgan and Feeley’s critique on our article “Mass Media in Organ Donation: Managing Conflicting Messages and Interests.” We noted that Morgan and Feeley agree with the position that the primary aims of media campaigns are: “to educate the general public about organ donation process” and “help individuals make informed decisions” about organ donation. For those reasons, the educational messages in media campaigns should not be restricted to “information from pilot work or focus groups” but should include evidence-based (...) facts resulting from a comprehensive literature research. We consider the controversial aspects about organ donation to be relevant, if not necessary, educational materials that must be disclosed in media campaigns to comply with the legal and moral requirements of informed consent. With that perspective in mind, we address the validity of Morgan and Feeley’s claim that media campaigns have no need for informing the public about the controversial nature of death determination in organ donation. Scientific evidence has proven that the criteria for death determination are inconsistent with the Uniform Determination of Death Act and therefore potentially harmful to donors. The decision by campaign designers to use the statutory definition of death without disclosing the current controversies surrounding that definition does not contribute to improved informed decision making. We argue that if Morgan and Feeley accept the important role of media campaigns to enhance informed decision making, then critical controversies should be disclosed. In support of that premise, we will outline: (1) the wide-spread scientific challenges to brain death as a concept of death; (2) the influence of the donor registry and team-huddling on the medical care of potential donors; (3) the use of authorization rather than informed consent for donor registration; (4) the contemporary religious controversy; and (5) the effects of training desk clerks as organ requestors at the Department of Motor Vehicles offices. We conclude that organ donation is a medical procedure subject to all the ethical obligations that the medical profession must uphold including that of transparency and truthfulness. (shrink)

This paper analyzes Mary Snell-Hornby's seminal theoretical framework for understanding translation as an inherently cultural process. Snell-Hornby was pioneering in establishing that translation requires navigating differences in worldviews and cultural competence. Key concepts explored are culture-bound language elements, the role of expertise, and translation studies' interdisciplinarity. Practical linguistic and textual challenges posed by cultural variation are examined, along with proposed strategies for references and idioms. Case studies reveal cultural influences on translation processes and outcomes. A critical evaluation identifies strengths like (...) emphasizing culture's centrality, and limitations addressed in later frameworks. Potential areas for further research building on Snell-Hornby's foundations are identifying, such as localized case studies, evolving digital implications, and refinement of guidance. Overall, Snell-Hornby established culture as integral to conceptualizing translation's complexities, with implications for both theory development and stewardship of cross-cultural exchange. (shrink)

The corona pandemic altered many traditional and historical norms of society and law. COVID-19 created a humanitarian crisis in some parts of globe, while pandemic privacy and civil liberties were under threat all over world. To combat the deadly virus, individual liberty and equality were compromised. This paper focuses on how India’s health problem has compromised people’s right to privacy. It will highlight how strict executive policies led to the creation of a massive surveillance system in the name of combating (...) the COVID-19 pandemic, as well as how the absence of any policy or legal framework led to the exclusion of individuals and their families who were suspected of having the virus or caring for those who were infected with the deadly virus. The paper uses case studies and data collected from primary as well as secondary sources. The authors will also point out how the absence of privacy regulation puts millions of citizens’ private information at risk of being compromised or exploited against their will. (shrink)

Advance health care directives and informed consent remain the cornerstones of patients' right to self-determination regarding medical care and preferences at the end-of-life. However, the effectiveness and clinical applicability of advance health care directives to decision-making on the use of life support systems at the end-of-life is questionable. The Uniform Anatomical Gift Act (UAGA) has been revised in 2006 to permit the use of life support systems at or near death for the purpose of maximizing procurement opportunities of organs medically (...) suitable for transplantation. Some states have enacted the Revised UAGA (2006) and a few of those have included amendments while attempting to preserve the uniformity of the revised Act. Other states have introduced the Revised UAGA (2006) for legislation and remaining states are likely to follow soon. (shrink)