In this paper, I explore the effects of religious denomination and patterns of church-going on the construction of political values for high-school students. I argue that religion plays a role in the formation of political attitudes among teenagers and it influences their political participation. I examine whether this relationship is constructed along denominational lines. From a theoretical perspective, previous research heralded the compatibility between Western Christianity and the democratic form of government. Samuel Huntington, in his famous Clash of Civilization, (...) argued that there is a natural symbiosis between Western Christianity and democratic forms of government, going insofar as to separate the world into religious civilizations. While, this approach essentializes religion as a fixed and immutable entity, Huntington also neglects the importance of dynamic historical, political and social contexts that can, and, in fact, do affect the functioning of religion in different countries, and hence their ability and willingness to accommodate democracy. Much research followed the Clash of Civilizations, either qualifying the central argument, by showing evidence of support for procedural democracy in most of the World, but without its liberal component or even arriving at the opposite conclusion that irrespective of religion, every country is “democratizable”. While I do not attempt to disconfirm fundamental huntingtonian thinking, I do raise the questions of how context can and does influence the intimate relationship between religion and politics. The analysis is conducted on survey data collected by the Center for the Study of Democracy (CSD) at Babes-Bolyai University with subjects of 14-15 years old, and the results show that, while Greek Orthodox students do not seem to differ in their political values form their Catholic and Protestant counterparts, they are more prone to participate politically. Nevertheless, their active participatory behavior is only more pronounced in what voting is concerned, an opposite effect being recorder for any other acts of political participation. (shrink)

Medical communication in Western-oriented countries is dominated by concepts of shared decision-making and patient autonomy. In interactions with Roma patients, these behavioral patterns rarely seem to be achieved because the culture and ethnicity have often been shown as barriers in establishing an effective and satisfying doctor–patient relationship. The study aims to explore the Roma’s beliefs and experiences related to autonomy and decision-making process in the case of a disease with poor prognosis. Forty-eight Roma people from two Romanian counties participated (...) in semi-structured interviews, conducted by a research team from the University of Medicine and Pharmacy of Iasi. Participants were recruited among the chronically ill patients and caregivers. The Roma community opposes informing the terminal patients about their condition, the “silence conspiracy” being widely practiced. The family fully undertakes the right of decision making, thus minimizing the patient’s autonomy. We identified ethical dilemmas concerning autonomy, lack of patients’ real decision-making power, and paternalistic attitudes exerted firstly by the family and, on demand, by the physician. Instead, the Roma patient benefits from a very active support network, being accompanied at the hospital by numerous relatives. The patient’s right to make autonomous decisions promoted in the Western countries and stipulated by the Romanian law has diminished value in the Roma community. For the Roma, the understanding of dignity is not simply individual and personal, but it is closely related to their cultural particularities. Ignoring their cultural values could create conflicts between healthcare providers and community. (shrink)

The present work approaches a series of wide exploratory investigations in the Romanian rural area, most recently in Livezile-Rimetea micro-region (Apuseni Mountains). Within the civil society and public participation debate context, the study focuses on the variable of religious affiliation (orthodox, non-orthodox), which differentiates the real potential public participation at the population level in the studied area. The immediate conclusion to be drawn is that in the differences in religious affiliation induce variations in expressing the civic activism (...) and in the real or the potential public participation. At the end of our study, the paradox of public participation as diminishing factor of the civil society role is taken into account and this concerns new reflections and investigations on the subject. (shrink)

The study discusses the paradox of the failure of the Romanian Church United with Rome, Greek-Catholic (RCUR) to assert itself after 1990, in the context of a revival of the life of all other religious communities. The significant decrease in the number of Greek-Catholic believers and the difficulties in exercising their rights are germane to the limits of democracy in Romania. No other vulnerable communities, neither immigrants, gays, Roma,nor Jehovah's Witnesses, have been denied, all this time, the protection of (...) the Romanian state, as Greek-Catholics have been. The systematic denial of the rights of the Romanian Church United with Rome (Greek-Catholic) is explained by the feature which distinguishes RCUR faithful from the members of other vulnerable communities: their organisation is perceived by the Romanian Orthodox Church (ROC) as an adversary. The Romanian Orthodox Church constantly proclaimed the illegitimacy of the RCUR in the first half of the twentieth century, and participated in its dissolution when the opportunity arose in 1948. It holds today the same explicit goal. The societal circumstances, specific to anarchic democracy, allow a major player like the ROC to impose its policy of undermining the RCUR. In accordance with Bruce Bueno de Mesquita and Alastair Smith's concept, the material and symbolic competition between the RCUR and the ROC is interpreted as an example of "bad behavior as good politics". The ROC strategy finds an optimal framework for maximizing gain in the circumstances of the Romanian anarchic democracy. (shrink)

Besides Dracula, Ceauşescu, and Nadia Comăneci, monasteries constitute a permanent Romanian brand, inextricably linked in every foreign visitor's mind to Romanianness. Specific to Moldavia and Bucovina—the Eastern and Northern parts of Romania—these monasteries have attracted visitors for the past 500 years. The person visiting a sacred site is transformed from being merely a tourist into a pilgrim. The painting “The Ladder towards Heaven” at the Pângăraţi Monastery, for example, highlights the importance of the mental and physical involvement of the (...) tourist-pilgrim as an interactive participant in the process of self-discovery. (shrink)

Studies on the determinants of school results have shown that they depend largely on the context of learning. Concerning the pandemic, teachers have been forced to find online teaching methods, which leads us to the central issue of this study of whether the effectiveness of online education depends on teachers’ digital skills. Therefore, in this study, we analyzed the perceived digital competences of Romanian pre-tertiary cycle teachers about their professional status, school location, gender, age, taught field, and prior (...) class='Hi'>participation in training for online teaching. Using data from 3,419 self-completed questionnaires in an online survey of teachers performed at the beginning of the global lockdown in March 2020, we have built two reliable measures of perceived digital skills, namely the Self-Assessed Multimedia and Online Skills Score and the Self-Assessed Digital Office Skills Score, which were the dependent variables in our study. Hierarchical linear regressions were used to test the hypotheses regarding the variations of dependent variables, measuring the two concepts of self-assessed digital skills. These concepts underlined that both decrease with age and are positively affected by prior attendance at training sessions for online teaching skills and by having ICT and informatics as a taught subject field. However, teachers of all specialties are relatively significantly less skilled in this field. The most important results concern the impact of gender and professional status on the teachers’ self-assessed digital competences. In summary, it appears that self-assessed office digital skills are a specialism demonstrated mainly by female teachers, while multimedia and online skills are perceived by teachers to be a “male” domain. Simultaneously, net of the other variables, a higher status within the teaching profession correlates positively with perceived office digital skills. Lastly, implications for future research, as well as for educational interventions and policies, are discussed. (shrink)

This paper aims to measure the quality of all Romanian cities’ websites in 2019 and 2022, before and after the disruptive event of COVID-19. Since the official websites are the core instrument of e-governance, the changes in the quality of Romanian cities’ websites reflect the changes in the development of urban e-governance in Romania. The COVID-19 lockdowns and contact restrictions and the moving of most activities into the online environment had the potential to impact the performance of (...) class='Hi'>Romanian cities’ websites significantly and catalyze the progress of local e-governance. The quality of Romanian cities’ official websites was measured using an adapted survey instrument proposed by Holzer and Kim and Manoharan, Melitski, and Holzer. The tool covers five critical criteria of website quality or performance: personal data security, usability, content, services, and citizen participation. The research results may seem contrary to expectations: the improvements of websites have been incremental rather than transformational. Although our research provides only a case study, we may assert that the reform of traditional administration remains a step-by-step process. Our study’s main contribution consists in showing that the progress of e-governance is an incremental process even in a situation of emergency that requires the moving of most activities into the online environment. (shrink)

Every year, the member Churches of the World Council of Churches (WCC) are called to actively participate in the meetings organized in the Week of Prayer for Christian Unity. From my perspective, these moments are an extraordinary opportunity to share in the richness of the Orthodox tradition, which means an act of confession and authentic witness. In the first part, I will present critically the canonical synthesis of the Orthodox, the concept of “Ecumenical Eucharist” and of Lima Liturgy, followed by (...) the recommendations of the Special Commission for Orthodox participation in the WCC regarding confessional and interconfessional common prayer. Then, this article will make a historical presentation of the week of prayer. It is very important to know how this initiative started and how it was accepted at the beginning and over the years. At least in Romania, where we have an Orthodox majority, this week has become a controversial issue produced by those who are against ecumenical dialogue. A special attention is for the actual practice approved by the Romanian Patriarchate. Finally, the article will present the statements of the new Orthodox documents and it will end with some conclusions about this moment of common Christian witness. (shrink)

Participants in this study were ethnic Hungarian secondary students attending high schools in Romania in which Hungarian was the primary language of instruction. Attitudes of participants toward ethnic and cultural groups were measured using a variation of the Bogardus (1933) Scale of Social Distance. Results were consistent with predictions based on Allport's intergroup contact theory. Students reported a wide range of tolerance levels for majority and minority ethnic groups with which they were likely to have contact in Romania. However, the (...) students reported little difference in tolerance levels for groups that are not a recognized part of the Romanian cultural landscape, such as people of Hispanic origin, and Native Americans. (shrink)

This study presents a series of theoretical aspects and empirical results obtained after some scientific research conducted on values (instrumental, terminal and religious) and on the political involvement of students from the university. The study was conducted using the statistical survey method in the aftermath of the general elections that took place in November 2008, among the student body of “Al. I. Cuza” University of Iasi, Romania. The analysis underlined the fact that pupils placed a great importance on values and, (...) considering the way they were ranked, the students are believed to have transmitted a specific signal on behalf of a social category that is struggling to be noticed in the context of the present Romanian society. The analysis also highlights the fact that the students’ political participation is not significantly correlated on a statistical level to the extent of their adhesion to the values studied in the survey. (shrink)

Communication about diagnosis and medical treatment for children suffering from life-threatening illnesses is complex. It is a primary step in involving underage patients and families in care and lays the foundation for obtaining parental permission and patient assent for treatment. In practice child participation in care is often difficult to obtain due to patients' different and sometimes fluctuating preferences, but also parents' protective strategies. Physicians may be susceptible to parental wishes to limit information and feel uncomfortable discussing issues related (...) to uncertainty of cure with patients. A qualitative study in Romanian paediatric oncology units was conducted to explore children's involvement from the perspectives of parents and oncologists. Interviews with participants discussed 18 patient cases. Data were transcribed and thematic analysis was used to interpret and mine patients' involvement during treatment. Different facets of patient participation were identified: restricting, widening and enhancing involvement. A fourth category, unintentional involvement, occurred for all patients due to children's observations during long-term hospitalisations and access to Internet. Uncertainty overarched parental attitudes regarding the extent to which children should be included. Physicians usually complied with parental wishes to limit involvement, but together with parents involved patients at least in a practical way. Adults' protective attitude may backfire, as adolescents' online searches often expose patients to worse-case scenarios. Further research should acknowledge the hazards of restricted diagnosis disclosure and develop clinician tools to support families in communicating with patients. This should be paralleled by physician efforts to elicit patients' needs regarding participation. (shrink)

Researchers and others involved in the research enterprise from 12 African countries met with those working in ethics and oversight in the United States as part of an effort to develop research ethics capacity. Drawing on a wealth of experience among participants, discussions at the meeting revealed five categories of issues that warrant careful attention by those engaged in similar efforts as well as international policymakers and those charged with oversight of research. (1) Principal investigators should build ‘true research teams’ (...) where members of the team are meaningfully involved in decisions regarding the protocol and its implementation. (2)There should be explicit discussion about the ‘standard of care’ at the outset of project planning that includes clarification of the terminology that is being used. (3) While internationally collaborative research may involve populations that have inherent vulnerabilities, it is important to recognize the limitations of host country solutions (such as elaborated consent processes) and look for means to negotiate appropriate protections for those willing to participate. (4) In conducting research involving biological materials it would be prudent to develop material transfer agreements at the outset of the study to clarify expectations and to minimize the likelihood of harm. (5) Those engaged in internationally collaborative research need to be alert to the potential conflicts of interests of host country ethics committees during the approval process and to take measures to manage them if they indeed exist. (shrink)

In the first decade post-1989 no gender policies with clear objectives and specific instruments existed in Romania. The gender mainstreaming was first stated in the two National Action Plans for Equal Opportunities between Women and Men (1996 and 2000). Still, the attention of the various Romanian Governments, concerning women's issues, was focused especially on labour relationships and on related domains, such as social security and health insurance. Other fields, such as education, political participation, family and civil rights, were (...) under- developed, as regards the consideration of women's needs and interests.The legislation and institutions that implement and monitor the observance of equality take no special interest in women's discrimination, as women are treated together with other discriminated categories (the disabled, Rroma, homosexuals). (shrink)

The present study explored the relationship between attitudes toward transgender individuals and the judgments people make in transgression scenarios involving transgender and cisgender individuals of different ages in a sample of 184 Romanian students. We used a mixed-method approach and tested the effect of gender identity on participants' punishments in a hypothetical transgression. In hypothetical transgressions involving preadolescent transgender and cisgender agents, results suggested no differences in participants' theft punishments. However, adult cisgender transgressors received significantly harsher punishments compared to (...) transgender transgressors. Our qualitative analyses suggested that the most frequent categories of responses justifying the punishments confirmed the importance of the agent's age. Our findings suggested no significant associations between participants' gender and reported the previous contact with an LGBTQ member and the punishments they chose for child and adult transgressors. Results are discussed in light of their implication in the contemporary, highly LGBTQ intolerant Romanian context. (shrink)

The Covid-19 pandemic is a global threat that affects a large part of the population, but the risks associated with it are higher for some people compared with others. Previous studies show that lower socioeconomic status is associated with more chronic stress and less marital satisfaction. Thus, the uncertainty caused by the pandemic might greatly affect those who were already vulnerable. This longitudinal study explores the extent to which stress originated outside and inside the relationship is associated with marital satisfaction (...) during the Covid-19 pandemic and whether the associations are different based on the socioeconomic status of the participants. The study was conducted at two points in time with a sample of 144 married Romanian couples. We used the Actor-Partner Interdependence Model with Mediation and multi-group SEM analysis. Higher levels of external stress were associated with subsequent lower marital satisfaction for women with higher SES. For the couples with lower SES, men's level of internal stress during the first assessment mediated the relationship between their higher level of external stress at the first time point and their partner's lower marital satisfaction during the second assessment. Our results show that men and women respond differently during a crisis and that couples with lower SES are more prone to greater stress and lower levels of marital satisfaction. We finally suggest that the therapists, health professionals, policy makers, and researchers should take into account the existing vulnerabilities of a couple when offering psychological and health services during the Covid-19 pandemic. (shrink)

It is now well-established that physical activity has positive effects on both physical and mental health. However, the influence of organized physical activity on school adaptive behavior of adolescents with disabilities and/or behavioral disorders remains unclear. School behavior adaptation involves the ability to learn, conform to school norms and manage school activities without major behavior conflicts. A cross-sectional study was conducted to test the differences between organized physical activity and non-organized physical activity in an after school program. Eighty Romanian (...) adolescents were recruited and allocated to three groups: with disabilities [Ds; N = 17, Mage = 14.55 years, 12 males and 5 females], with conduct disorders [CDs, N = 21, Mage = 14.52 years 16 males and 5 females], and participants who had not shown signs of conduct disorders or disabilities [as a control group; N = 42, Mage = 14.2 years 20 males and 22 females]. Personality traits, school behavior, and sensorimotor coordination were assessed by using the Eysenck personality questionnaire—junior scale, school in-adaptability questionnaire scale, and Vienna Test System Sport respectively. Multivariate analysis of variance MANOVA and discriminant analysis were used to examine differences between the psychological and sensorimotor coordination outcomes across three groups and three types of physical activity context: organized physical activity, non-organized physical activity, and no physical activity. The findings indicate that not participating in an organized physical activity program results in a reduced level of physical mobility and consequently is associated with maladaptive social and psychological outcomes. Thus, we argued that attending in an organized physical activity program is more beneficial for participants with disabilities and/or behavior disorders, due to an increase in the probability of school integration and development of their motor skills. Clearly more research is needed in order to investigate these effects in neurophysiological levels. (shrink)

The lifting of work restrictions for Romanian and Bulgarian citizens in the EU, in January 2014, encountered much resistance both in European political discourse and the media, as these migrants became demonised and presented as social and economic threats. In this article, we show how the Romanian press dealt with such discriminatory discourses against the Romanian migrants. We conduct a thorough Multimodal Critical Discourse Analysis of news items published in Romanian press, prior to the lifting of (...) work restrictions, and we argue that the Roma emerged as the perfect scapegoats that could explain the deviant and unruly behaviours ascribed by some western media to ‘Romanians’. We also show how racism toward the Roma, referred here as Romaphobia, invokes non-racial practices and instead builds on a reverse victimhood narrative. Such discourses relate in a broader sense to well-established discursive practices in Romanian context but also to the political climate across Europe which is marked by increased intolerance toward the Roma. It is the mixture of stereotypical discourses and populist rhetoric that makes racism towards the Roma appear naturalised and increasingly more difficult to challenge. (shrink)

This dialogue between Paul Ricoeur and Sorin Antohi took place in Budapest on March 10, 2003 at Pasts, Inc., Center for Historical Studies, which is affiliated with Central European University (CEU). Ricoeur was the honorary president of Pasts, Inc., and its spiritus rector. On March 8, he had given a lecture on "History, Memory, and Forgetting" in the context of an international conference entitled "Haunting Memories? History in Europe after Authoritarianism," and organized by Pasts Inc. and the Körber Foundation. On (...) March 9, Ricoeur had received the first Honoris Causa doctorate ever granted by CEU. Ricoeur had already visited Hungary in 1933. At the time, he was participating in a Boy Scouts European jamboree at Gödöllö (where he also saw Horthy on his white horse). After WWII, he went back to Hungary to meet with Lukács. Mona Antohi has transcribed and edited the recording of the dialogue. The two interlocutors have then made some minor revisions. The original text, in French, is available on the website of Pasts, Inc. (www.ceu.hu/pasts). This English version, translated and annotated by Gil Anidjar, will be included in Sorin Antohi's book, Talking History. Making Sense of Pasts, forthcoming in 2006 from CEU Press. His own Romanian translation of the dialogue was published in the Iasi-based journal, Xenopoliana (3-4, 2004), as was the Hungarian translation by Réka Toth, which appeared in the Budapest-based journal, 2000 (November-December 2003). (shrink)

It is now well-established that physical activity has positive effects on both physical and mental health. However, the influence of organized physical activity on school adaptive behavior of adolescents with disabilities and/or behavioral disorders remains unclear. School behavior adaptation involves the ability to learn, conform to school norms and manage school activities without major behavior conflicts. A cross-sectional study was conducted to test the differences between organized physical activity and non-organized physical activity in an after school program. Eighty Romanian (...) adolescents were recruited and allocated to three groups: with disabilities [Ds;N= 17,Mage= 14.55 years, 12 males and 5 females], with conduct disorders [CDs,N= 21,Mage= 14.52 years 16 males and 5 females], and participants who had not shown signs of conduct disorders or disabilities [as a control group;N= 42,Mage= 14.2 years 20 males and 22 females]. Personality traits, school behavior, and sensorimotor coordination were assessed by using the Eysenck personality questionnaire—junior scale, school in-adaptability questionnaire scale, and Vienna Test System Sport respectively. Multivariate analysis of variance MANOVA and discriminant analysis were used to examine differences between the psychological and sensorimotor coordination outcomes across three groups and three types of physical activity context: organized physical activity, non-organized physical activity, and no physical activity. The findings indicate that not participating in an organized physical activity program results in a reduced level of physical mobility and consequently is associated with maladaptive social and psychological outcomes. Thus, we argued that attending in an organized physical activity program is more beneficial for participants with disabilities and/or behavior disorders, due to an increase in the probability of school integration and development of their motor skills. Clearly more research is needed in order to investigate these effects in neurophysiological levels. (shrink)

The beginnings of modern Romanian culture coincide with the discovery of folk literature. The first to benefit from this true “revelation,” around the middle of the last century, were two of the most authentic representatives of Romanian romanticism: Vasile Alecsandri and Alecu Russo. However, the earliest manifesto of Romanian romanticism was not very explicit in its treatment of the subject, because others who participated in the current—especially Mihail Kogălniceanu and Nicolae Bălcescu— were primarily historians. In 1840 the (...) contensts of Dacia literară, a magazine edited by them, gave literary status to heroic events that had entered into Romanian history; second place was reserved for the beauty of the Romanian countryside; the picturesque and the poetic content of the traditions held by the people who had lived this history and animated this countryside were only third in importance. Now, the term “traditions” could be applied in the same way to different artistic expressions: dance, music or literature. (shrink)

Within the historical approach on interreligious dialogue, it should not be overlooked that the representatives of Orthodox Churches were actively involved in promoting and supporting interreligious dialogue by participating in the meetings that have focused on relations with people of other religions. In this context, the Orthodox Churches come with a whole tradition that stretches to the early centuries, the relations with Jews and Muslims being an integral part of the history of Orthodox Christianity. The Orthodox Christians, with their bi-millennium (...) tradition, where there are different interpretations of other religions, bring to the modern world an approach that takes into account personal relationship with people of other religions. Analyzing how the representatives of the Orthodoxy and the Islam in Romania are trying to find solutions to the many problems facing the world today, we can say that lately in Romania, the interreligious, intercultural and interethnic dialogue increased both quantitatively and qualitatively. Among the followers of the two religions that live in these territories for centuries, the relations have varied over the time, reaching today to a situation in which the believers live in peace, protected by the laws of the Romanian state which guarantee the freedom of thought and religious expression. Moreover, lately it has been attempted to find solutions to the global crises which are, not infrequently, religious. (shrink)

In a previous essay (Sison and Fontrodona 2012), we defined the common good of the firm as collaborative work, insofar as it provides, first, an opportunity to develop knowledge, skills, virtues, and meaning (work as praxis), and second, inasmuch as it produces goods and services to satisfy society’s needs and wants (work as poiesis). We would now like to focus on the participatory aspect of this common good. To do so, we will have to identify the different members of the (...) firm as a community, drawing from corporate citizenship literature and stakeholder theory. Afterward, we will explore both the manner and the intensity of these different members’ participation and its impact on the firm’s common good. (shrink)

According to Iris Marion Young, a structural injustice occurs when members participating in one or more scheme of social coordination act blamelessly, but the schemes, in combination with norms and background conditions, systematically prevent some from developing their capacities and fulfilling their rights. Because participants are mostly blameless, Young argues that traditional individualist theories of responsibility inadequately address structural injustices. Young instead proposes a social connection theory of responsibility, whereby participants in a structural injustice acquire forward-looking responsibilities to remediate the (...) injustice by organizing, voting, protesting and pressuring institutions. In this paper, I argue that Young’s theory of structural injustice conflates several different moral failings, and that when we correctly disambiguate structural injustices, we can successfully address them with traditional individualist theories of responsibility, both forward-looking and backward-looking. (shrink)

This article presents two studies that examine cause-related marketing promotions that require consumers’ active participation. Requiring a follow-up behavior has very valuable implications for maximizing marketing expenditures and customer relationship management. Theories related to ethical behavior, like motivated reasoning and defensive denial, are used to explain when and why consumers respond negatively to these effort demands. The first study finds that consumers rationalize not participating in CRM by devaluing the sponsored cause. The second study identifies a tactic marketers can (...) utilize to neutralize consumers’ use of defensive denial. Allowing the consumer to choose the sponsored cause seems to effectively refocus their attention and increases consumers’ threshold for campaign requirements. Implications for nonprofits and marketing managers include a tendency for consumers to be more likely to perceive a firm as ethical and socially responsible when they are allowed to choose the specific cause that is supported. (shrink)

Few ideas have excited greater interest among theologians in recent decades than the idea of 'participation'. In thinking about creation, it is the notion that everything comes from, and depends upon, God, inviting the language of sharing, or of an exemplar and its images; in thinking about redemption, it points to the restoration of that image, and is expressed in the language of communion with God and with the redeemed community. In this volume, Andrew Davison considers these themes in (...) unprecedented breadth, investigating the fundamental character of participation as it can be applied to a wide range of theological topics. Exploring what it means to know, to love, to do good, and to live together well, he shows how these ideas animate a particular understanding of human life and how we relate to the world around us. His book offers the most comprehensive survey of participation to date, contributing to detailed discussions of these themes among academic theologians. (shrink)

The aim of the present study was to describe variations in patient participation in decisions about care planning during the final phase of life for a group of gravely ill patients, and how the different actors’ manner of acting promotes or impedes patient participation. Thirty-seven qualitative research interviews were conducted with relatives of the patients. The patients’ participation in the decisions could be categorized into four variations: self-determination, co-determination, delegation and nonparticipation. The manner in which patients, relatives (...) and caregivers acted differed in the respective variations; this seemed either to promote or to impede the patients’ opportunities of participating in the decision making. The possibility for participation seems to be context dependent and affected by many factors such as the dying patient’s personality, the social network, the availability of different forms of care, cultural values, and the extent to which nurses and other caregivers of the different forms of care can and want to support the wishes of the patients and relatives in the decision-making process. (shrink)

Background: Research concerning relatives’ participation in the everyday care related to persons living in special care units for persons with dementia is limited. Research questions: To examine relatives’ participation in their near one’s everyday care, the level of burden experienced and important factors for participation, in this special context. Design: The study had a cross-sectional design, and data collection was carried out by means of a study-specific questionnaire. Participants and context: A total of 233 relatives from 23 (...) different special care units participated. Ethical consideration: The study was approved by the Norwegian Social Science Data Services. Results: A great majority of relatives reported that they visited weekly and were the resident’s spokesperson, but seldom really participated in decisions concerning their everyday care. Participation was seldom reported as a burden. Discussion: This study indicated that relatives were able to make a difference to their near one’s everyday life and ensure quality of care based on their biographical expertise, intimate knowledge about and emotional bond with the resident. Since knowing the resident is a prerequisite for providing individualised care that is in line with the resident’s preferences, information concerning these issues is of utmost importance. Conclusion: This study prompts reflection about what it is to be a spokesperson and whether everyday care is neglected in this role. Even though relatives were satisfied with the care provided, half of them perceived their participation as crucial for the resident’s well-being. This indicated that relatives were able to offer important extras due to their biographical expertise, intimate knowledge about and emotional bond with the resident. Good routines securing that written information about the residents’ life history and preferences is available and used should be implemented in practice. (shrink)

Given some of the various possible impacts of clinical germline editing, we can expect robust disagreement about how best to regulate it. One can point to examples of the promise of editing: “rough...

The availability of willing providers of medical assistance in dying in Canada has been an issue since a Canadian Supreme Court decision and the subsequent passing of federal legislation, Bill C14, decriminalised MAiD in 2016. Following this legislation, Hamilton Health Sciences in Ontario, Canada, created a team to support access to MAiD for patients. This research used a qualitative, mixed methods approach to data collection, obtaining the narratives of providers and supporters of MAiD practice at HHS. This study occurred at (...) the outset of MAiD practice in 2016, and 1 year later, once MAiD practice was established. Our study reveals that professional identity and values, personal identity and values, experience with death and dying, and organisation context are the most significant contributors to conscientious participation for MAiD providers and supporters. The stories of study participants were used to create a model that provides a framework for values clarification around MAiD practice, and can be used to explore beliefs and reasoning around participation in MAiD across the moral spectrum. This research addresses a significant gap in the literature by advancing our understanding of factors that influence participation in taboo clinical practices. It may be applied practically to help promote reflective practice regarding complex and controversial areas of medicine, to improve interprofessional engagement in MAiD practice and promote the conditions necessary to support moral diversity in our institutions. (shrink)

This paper discusses the discourse of ‘participation’ in the context of genetic databases. Focusing on UK Biobank, it suggests that this discourse can be seen as a reflexive institutional response to public ambivalence towards science and expertise. Drawing on empirical evidence from focus groups, I explore how people from various backgrounds constructed and contested two different kinds of participation in UK Biobank. The first relates to people providing research materials to genetic databases and the second to people becoming (...) ‘co-decision makers’ in these projects. My analysis highlights how focus groups positioned themselves and others in relation to UK Biobank and drew on a variety of ‘discursive repertoires’, such as altruism, public ignorance, expertise, and lay empowerment. I conclude that discourses of participation reflect the way people position themselves and others - as experts, publics, patients, or research subjects - in relation to the opportunities and uncertainties of new biomedical research. (shrink)

I offer an interpretation of the target of Søren Kierkegaard’s corrective to Luther as not merely cultural Lutheranism but Luther's very conception of what it means to be receptive to grace. On this interpretation, while Kierkegaard affirms that salvation is by grace alone, and through faith alone, he thinks that Luther errs when he conceives of salvation as a process in relation to which the believer is merely passive. Instead, in Kierkegaard’s view, receptivity to grace involves a distinctive, middle-voiced, form (...) of human agency in which the believer learns to acknowledge her need for grace. With reference to Kierkegaard’s discourses on patience, and their thematic proximity to the spirituality of the Philokalia, I illustrate this conception of active-passivity and show how it is compatible with an uncompromising Lutheran emphasis on human powerlessness. With reference also to his insistence of the irreducible importance of the participant’s perspective, I further draw out from Kierkegaard an account of why the temptation may arise to erroneously interpret the core tenets of Luther's teaching, in the mode of a theory of soteriological passivity. (shrink)

Our starting point in this article is the debate between John Harris and Iain Brassington on whether or not there is a duty to take part in scientific research. We consider the arguments that have been put forward based on fairness and a duty to rescue, and suggest an alternative justification grounded in a hypothetical agreement: that is, because effective healthcare cannot be taken for granted, but requires continuous medical research, and nobody knows what kind of healthcare they will need, (...) participating in research should be viewed from the perspective of a social contract, based on our mutual need for medical advances. (shrink)

Moral case deliberation (MCD) is a form of clinical ethics support in which the ethicist as facilitator aims at supporting professionals with a structured moral inquiry into their moral issues from practice. Cases often affect clients, however, their inclusion in MCD is not common. Client participation often raises questions concerning conditions for equal collaboration and good dialogue. Despite these questions, there is little empirical research regarding client participation in clinical ethics support in general and in MCD in particular. (...) This article aims at describing the experiences and processes of two MCD groups with client participation in a mental healthcare institution. A responsive evaluation was conducted examining stakeholders’ issues concerning client participation. Findings demonstrate that participation initially creates uneasiness. As routine builds up and client participants meet certain criteria, both clients and professionals start thinking beyond ‘us-them’ distinctions, and become more equal partners in dialogue. Still, sentiments of distrust and feelings of not being safe may reoccur. Client participation in MCD thus requires continuous reflection and alertness on relational dynamics and the quality of and conditions for dialogue. Participation puts the essentials of MCD (i.e., dialogue) to the test. Yet, the methodology and features of MCD offer an appropriate platform to introduce client participation in healthcare institutions. (shrink)

In lieu of an abstract, here is a brief excerpt of the content:SBCS Participation in Interfaith Coalition Conference for Global Citizens and Visit to Sogang University ReportsLeo D. Lefebure and Kunihiko TerasawaOn August 21–22, 2023, Mark Unno, Carolyn Jones Medine, Kunihiko Terasawa, Grace Song, and Leo D. Lefebure participated in the historic first in-person meeting of the ICCGC in Seoul, organized by our Won Buddhist colleagues with support from the Ministry of Culture, Sports, and Tourism of the Republic of (...) Korea and the United Religions Initiative in collaboration with SBCS, Wonkwang University, and the Focolare Movement Korea. Leaders from NGSs affiliated with the United Nations, as well as Religions for Peace and Rissho Kosei-kai, also participated.Grace served as a most gracious host for the program. Before the official opening of the conference, Mark chaired a panel discussion on interfaith dialogue, and Leo chaired a session on work for peace. Leo served as co-chair of the conference and offered opening remarks welcoming former UN Secretary General Ban Ki-moon, who delivered the keynote speech on "Global Citizenship Now." Mark, Kuni, Carolyn, and Kathy Matsui participated in a panel discussion of global citizenship and the path to peace. Leo gave a talk on the role of religion in a fragmented world and participated in a panel discussion on the place of religion in education for global citizenship.After the ICCGC meeting had ended, Mark, Carolyn, Kuni, Grace, and Leo traveled to the headquarters of Won Buddhism in Iksan, where we met their Head Dharma Master Ven. Jeonsan and other leaders. Mark delivered cordial remarks on behalf of all of us in SBCS.The organizers hope to convene the next meeting of the ICCGC in Manhattan in late August 2024 in co-operation with the NGO leaders attached to the UN.Visit to Sogang University in SeoulIn August 2023, Kunihiko Terasawa and Leo D. Lefebure visited Sogang (Jesuit) University in Seoul. Bhikshu Do Sun of the Jogye Order of Korean Buddhism, who is a doctoral student in Buddhist-Christian studies at Sogang University, graciously met Leo at the airport and accompanied him to the university, where they had dinner with Kuni and a Georgetown University graduate student, Mideum Hong, who is from Korea. Do Sun later accompanied Leo on a visit to the main Jogye Temple in Seoul and to the fine collection of Buddhist art at the National Museum of Korea. The following day, Kuni and Leo had an extended conversation with retired Archbishop Hyginus KIM Hee-joong and Sogang Professor Kim Chae Young. Archbishop Kim [End Page 237] discussed both his extensive interreligious experience with Buddhists and shamanic practitioners, and also his work for more peaceful relations between North and South Korea. The next day, Leo and Kuni met with the leaders of the Woori Theology Institute in Seoul, Balbina Lee and Paul Hwang, who discussed their interreligious efforts in pursuit of social justice and peace.On August 18 and 19, Kuni and Leo participated in a conference on How to Teach Religious Diversity at Christian Universities or Colleges, organized by Kim Chae Young. On the first day of the conference, Leo offered an overview of recent Buddhist-Christian relations in the United States, including activities of SBCS such as the 2021 Statement of Solidarity with Persons of Asian and Pacific Island Descent, and Kuni offered a presentation on interreligious dialogue figures in Japan. On the second day, Kuni spoke about Buddhist-Christian double belonging, and Leo spoke about methods in the comparative study of religion. There were participants from the Church of Jesus Christ of the Latter-Day Saints and also from Fu Jen Catholic University in Taipei, Won Buddhism, the Assemblies of God in Korea, and the Korean Council for University Education.On August 20, Kuni and Leo had an extended discussion with Seil Oh, SJ, the vice president of Sogang University for international relations. Seil Oh expressed the intense interest of Sogang University in developing international contacts, including with regard to developing Buddhist-Christian relations. SBCS members who are interested can contact Leo or Kuni for more information.kunihiko terasawa's reportA week before Leo D. Lefebure and I joined Won Buddhism's ICCGC, along with Mark Unno and Carolyn Medine... (shrink)

Background The twenty-first century has witnessed an exponential increase in healthcare quality research. As such activities become more prevalent, physicians are increasingly needed to participate as subjects in research and quality improvement (QI) projects. This raises an important ethical question: how should physicians be remunerated for participating as research and/or QI subjects? Financial versus non-monetary incentives for participation Research suggests participation in research and QI is often driven by conditional altruism, the idea that although initial interest in enrolling (...) in research is altruistic or prosocial, decisions to actually perform study tasks are cost–benefit driven. Thus, the three models commonly employed to appropriately compensate participants (in-kind compensation such as travel reimbursement, paying market rates for the subject’s time, and paying market rates for the activity asked of the participant) are a poor fit when the participant is a clinician, largely due to the asymmetry between cost and benefit or value to the participant. Non-monetary alternatives such as protected time for participation, continuing education or maintenance of certification credit, or professional development materials, can provide viable avenues for reducing this asymmetry. Conclusion Research and QI are integral to the betterment of medicine and healthcare. To increase physician participation in these activities as the subject of study, new models are needed that clarify the physician’s role in research and QI as a subject. Non-monetary approaches are recommended to successfully and ethically encourage research and QI participation, and thus incorporate these activities as a normal part of the ethical clinician’s and successful learning healthcare system’s world view. (shrink)

“Democratization” has recently become a popular trope in Western public discourses on medicine, where it refers to patient participation in the gathering and distribution of health-related data using various digital technologies, in order to improve healthcare technically and socially. We critically analyze the usage of the term from the perspective of the “politics of buzzwords.” Our claim is that the phrase works primarily to publicly justify the dramatic increase in the application of information and data technologies in healthcare and (...) therefore fosters the corresponding industry. As a buzzword, “democratizing healthcare” is characterized by vagueness, which is why it receives meaning only through a word collective—a group of words that provide it with a context and are often used together with it. We examine key terms associated with “democratization” in the healthcare discourse—participation, empowerment, and personalized medicine—and show that the buzzword receives rhetorical power through the ambiguous reference to these concepts. As a consequence, the idea of “democracy” becomes diluted into meaning merely “access to,” and “healthcare” is reduced to the notion of a preventive, nonacute, monitored form of medical care. (shrink)

In this article, the author focusses on the importance and possible value of the concepts of cognition and recognition for reflection on what should actually happen during celebration of Holy Communion. The point of departure is that celebration, in essence, means that it should be a meaningful experience. The meaningfulness consists of the intriguing fact that participants are participating in Christ’s body and in his blood while celebrating Holy Communion. In celebrating Holy Communion, people are engaging in a ritual that (...) involves interaction with a variety of symbols. The author offers perspectives based on a qualitative empirical study in which people expressed their views on what they actually experience when celebrating the sacrament of Holy Communion. The article adheres to Browning’s methodological insights. He describes research activity as ranging from description, to systemising, to strategising. The research problem is as follows: ‘Could cognisance of the lenses of cognition and recognition of the deeper message of Holy Communion enrich the conscious appropriation of salvation while celebrating the sacrament of Holy Communion?’ The research problem is addressed from the vantage point of understanding sacraments from a Reformed perspective. The concepts of cognition and recognition are highlighted in a brief historical description of what a sacrament is, taking into account the insights from social psychology regarding the essence of the concepts of cognition and recognition. The author further elaborates on the functioning of the concepts of cognition and recognition. In the last section of the article, the author utilises a hermeneutical interaction between descriptive and systemising perspectives to formulate strategies for how people’s experiences of participation in Holy Communion can be enriched through the meaningful lenses of cognition and recognition. (shrink)

Over the past few years, a growing number of people have called for reconceptualizing participation in health research as a moral obligation. John Harris argues that seriously debilitating diseases give rise to important needs, and since medical research is necessary to relieve those needs in many circumstances, people are morally obligated to act as research subjects.1 Rosamond Rhodes claims that research participation is a moral obligation for reasons of justice, beneficence, and self-development: because we all benefit significantly from (...) modern medicine, we are all required to do our part in advancing the state of medical knowledge.2 Individuals who reap the benefits of medical knowledge without contributing .. (shrink)

This paper makes the case for an environmental justice approach to the practice and study of participation and effectiveness in agrobiodiversity governance. It is argued that, in order to understand the conditions under which participation leads to improved outcomes, the concept has to be rethought, both from a political and a methodological perspective. This can be done by applying an ex-ante environmental justice approach to participation, including notions of distribution, recognition and representation. By exploring the approach through (...) empirical examples of participation in biodiversity and environmental governance, a research framework is outlined, attempting to bridge normative and practical approaches to environmental justice, and tested on two cases of agrobiodiversity governance in Western Europe. (shrink)

Various kinds of user and patient involvement are spreading in healthcare in most Western countries. The purpose of this study is to critically assess the actual conditions for patients’ involvement in healthcare practice in Greenland and to point to possibilities for development. Patients’ perspectives on their own conduct of everyday life with illness and their possibilities for participation when hospitalized are examined in relation to the conditions in a hospital setting dominated by biomedical practice. On a theoretical level, it (...) is argued that the concept of ‘participation’ is preferable to the concept ‘involvement’ in healthcare. The study shows that there are several interconnected areas for development: the structural frames of hospital practice, including professionals’ possibilities for handling patient participation, and the agency of the patients conducting their everyday lives when hospitalized. Consequences of the biomedical hegemony are discussed in relation to WHO ́s broader approach to disease, illness and health and the still existing postcolonial traces of power and hierarchy. Finally it is argued that patient participation during hospitalization will promote the patients ́ conduct of everyday life, the cultural knowledge of the professionals, and the democratization of the healthcare sector. Such changes might be connected to a more encompassing democratic societal development – in Greenland as well as globally. (shrink)

This article draws on Hannah Arendt’s analysis of authority in education, along with her insights into the workings of the imagination and the thinking process, to argue that participation in education should be conceived as an invitation to become towards the world. The potential of this invitation, the article argues, is located in the educator’s imaginative and thoughtful responsibility to receive the young as they are and as they are becoming on the one hand, and to represent the world (...) to them, on the other hand. The ways in which this potential can be negated are examined in relation to Arendt’s accounts of non-thinking and wilfulness. The article advances to the conclusion that participation in an education is possible only where young persons are received by educators who are persistently awake to their responsibility to receive the young people they educate anew. (shrink)

Over the past several years, the most widely publicized issue in capital litigation has been the constitutional status of states’ lethal injection protocols. Death row inmates have not challenged the constitutionality of lethal injection itself, but rather execution protocols and their potential for maladministration. The inmates’ concern is due to the three-drug protocol used in the vast majority of capital jurisdictions: if the anesthetic, which is administered first, is ineffectively delivered, then the second and third drugs — the paralytic and (...) heartbeat-ceasing agents — will cause torturous pain and suffering in violation of the Eight Amendment. Inmates have argued that the participation of anesthesiologists or other highly trained medical professionals is constitutionally required to minimize the risk of unnecessary suffering. This litigation, in conjunction with evidence that some executed inmates suffered torturous pain, has reinvigorated the ethical debate about physician participation in executions. Even though the United States Supreme Court has signaled that physician participation is not constitutionally required, lawmakers in death penalty states must consider the ethics of physician involvement. (shrink)

According to Avia Pasternak, citizens can be held responsible for their state’s wrongdoing if and only if they contribute to maintaining it by acting as intentional participants in its activities. I examine two specific aspects of this general claim. First, I ask whether intentional participation requires that the citizen should accept the state, in the sense of not viewing her membership as unwillingly forced upon her, and conclude that it does not. Second I explore how the claim applies in (...) the case where there has been a discontinuity in the form of the state. I argue that it is not a condition of collective liability today that the predecessor state’s subjects should have been intentional participants at the time at which the wrongdoing occurred. (shrink)