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  1.  38
    Can we know if donor trust expires? About trust relationships and time in the context of open consent for future data use.Felix Gille & Caroline Brall - 2022 - Journal of Medical Ethics 48 (3):184-188.
    As donor trust legitimises research, trust is vital for research in the fields of biomedicine, genetics, translational medicine and personalised medicine. For parts of the donor community, the consent signature is a sign of trust in research. Many consent processes in biomedical research ask donors to provide their data for an unspecified future use, which introduces uncertainty of the unknown. This uncertainty can jeopardise donor trust or demand blind trust. But which donor wants to trust blindly? To reduce this uncertainty, (...)
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  2.  14
    “I think all of us should have […] much better training in ethics.” Ethical challenges in policy making during the COVID-19 pandemic: Results from an interview study with Swiss policy makers and scientists.Caroline Brall, Felix Gille, Caroline Schlaufer, Rouven Porz & Ralf J. Jox - 2024 - BMC Medical Ethics 25 (1):1-11.
    Background The COVID-19 pandemic posed many unprecedented challenges to health care systems and public health efforts worldwide. Policy making and science were deeply intertwined, in particular with regard to the justification of health policy measures. In this context, ethical considerations were often at the core of decision-making trade-offs. However, not much is known about the actual ethical challenges encountered by policy makers and scientists involved in policy advice. With this study, we therefore aim to explore the ethical challenges during COVID-19-related (...)
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    Limits of data anonymity: lack of public awareness risks trust in health system activities. [REVIEW]Caroline Brall & Felix Gille - 2021 - Life Sciences, Society and Policy 17 (1):1-8.
    Public trust is paramount for the well functioning of data driven healthcare activities such as digital health interventions, contact tracing or the build-up of electronic health records. As the use of personal data is the common denominator for these healthcare activities, healthcare actors have an interest to ensure privacy and anonymity of the personal data they depend on. Maintaining privacy and anonymity of personal data contribute to the trustworthiness of these healthcare activities and are associated with the public willingness to (...)
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