Results for ' Informed consent'

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  1.  7
    Leaving Laputa: What Doctors Aren’t Taught about Informed Consent.Edmund G. Howe - 2000 - Journal of Clinical Ethics 11 (1):3-13.
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  2.  71
    Patients' perception and actual practice of informed consent, privacy and confidentiality in general medical outpatient departments of two tertiary care hospitals of Lahore.Ayesha Humayun, Noor Fatima, Shahid Naqqash, Salwa Hussain, Almas Rasheed, Huma Imtiaz & Sardar Imam - 2008 - BMC Medical Ethics 9 (1):14-.
    BackgroundThe principles of informed consent, confidentiality and privacy are often neglected during patient care in developing countries. We assessed the degree to which doctors in Lahore adhere to these principles during outpatient consultations.Material & MethodThe study was conducted at medical out-patient departments (OPDs) of two tertiary care hospitals (one public and one private hospital) of Lahore, selected using multi-stage sampling. 93 patients were selected from each hospital. Doctors' adherence to the principles of informed consent, privacy and (...)
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  3.  48
    Family-Oriented Informed Consent: East Asian and American Perspectives.Ruiping Fan (ed.) - 2015 - Cham: Springer Verlag.
    In recent years, Confucian ethics has been considered as an alternative to the individual-oriented model of medical decision-making that is dominating in the modern West.
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  4.  46
    Engaging with children in research: Theoretical and practical implications of negotiating informed consent/assent.Veronica Lambert & Michele Glacken - 2011 - Nursing Ethics 18 (6):781-801.
    At the outset of an ethnographic inquiry, we navigated national and international resources to search for theoretical and practical guidance on obtaining parents and children’s informed consent/assent. While much theoretical guidance debating ethical issues to children’s participation in research was found, a paucity of published papers offering practical guidance on assent processes and/or visual representations of child assent forms and information sheets was discovered. The purpose of this article is to describe our experiences, both theoretically and practically, of (...)
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  5. Physician-mediated elective whole genome sequencing tests : impacts on informed consent.Magalie Leduc Emily Qian, Bryan Cosca Rebecca Hodges, Laurie McCright Ryan Durigan & Birgit Funke Doug Flood - 2021 - In I. Glenn Cohen, Nita A. Farahany, Henry T. Greely & Carmel Shachar, Consumer genetic technologies: ethical and legal considerations. New York, NY: Cambridge University Press.
     
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  6.  53
    Ethical imperialism and informed consent.Lisa H. Newton - 1989 - IRB: Ethics & Human Research 12 (3):10-11.
  7.  36
    Comprehension of Informed Consent for Research: Issues and Directions for Future Study.Harvey A. Taub - 1986 - IRB: Ethics & Human Research 8 (6):7.
  8.  38
    Failure of informed consent in compensated non-related kidney donation in the Philippines.Tsuyoshi Awaya, Lalaine Siruno, Sarah Jane Toledano, Francis Aguilar, Yosuke Shimazono & Leonardo D. De Castro - 2009 - Asian Bioethics Review 1 (2):138-143.
  9.  28
    More than Conveying Information: Informed Consent as Speech Act.David C. Magnus, Jacob A. Blythe, Jason N. Batten & Bonnie O. Wong - 2021 - American Journal of Bioethics 21 (5):1-3.
    In their target article, Millum and Bromwich situate their article against a backdrop of well-documented empirical research demonstrating that many participants have variable and often poor...
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  10. On Family Informed Consent in the Legislation of Organ Donation in China.Yu Cai - 2015 - In Ruiping Fan, Family-Oriented Informed Consent: East Asian and American Perspectives. Cham: Springer Verlag.
     
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  11. Individually Directed Informed Consent and the Decline of the Family in the West.Mark J. Cherry - 2015 - In Ruiping Fan, Family-Oriented Informed Consent: East Asian and American Perspectives. Cham: Springer Verlag.
     
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  12.  20
    Barriers Encountered Conducting Informed Consent Research.Patricia Agre, Bruce Rapkin, James Dougherty & Roger Wilson - 2002 - IRB: Ethics & Human Research 24 (4):1.
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  13.  11
    Interviews and Informed Consent.Nancy R. Angoff - 1987 - Hastings Center Report 17 (5):44-44.
  14.  22
    Case vignette: placebos and informed consent.J. Blustein, W. Robinson, G. S. Loeben & B. S. Wilfond - 1997 - Ethics and Behavior 8 (1):89-98.
  15.  31
    Randomization and the transactional framework for informed consent.Don Reynolds & David A. Fleming - 2009 - American Journal of Bioethics 9 (2):16 – 17.
  16.  36
    The Alchemy of Informed Consent.Richard T. Hull - 2002 - Journal of Clinical Ethics 13 (1):63-66.
    on the part of physicians are most welcome and not to be disputed. If widely implemented, they should substantially improve the atmosphere of relations between patients and physicians. So, what, if anything, is to be said about his diagnoses and prescriptions, other than "Right on!?".
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  17.  79
    Editorial: Could informed consent be harmful? – the problem of the nocebo effect.David Hunter - 2012 - Research Ethics 8 (3):151-153.
  18.  26
    Views of dental professionals and dental patients in Jos, Nigeria concerning the need for informed consent prior participation in dental clinical research.OlaniyiOlufemi Taiwo & Raymond Panas - 2013 - Journal of Education and Ethics in Dentistry 3 (1):14.
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  19.  35
    Issues and Challenges on Informed Consent in Biomedical Research Involving Human Participants: An Indian Perspective.Ragini Kulkarni - 2014 - Asian Bioethics Review 6 (4):371-390.
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  20.  13
    Factors that Predict Better Informed Consent.Wendy Levinson, Kelly Fryer-Edwards, Mark A. Micek & Clarence H. Braddock - 2002 - Journal of Clinical Ethics 13 (4):344-352.
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  21.  14
    Four. The Doctrine of Informed Consent.Donald Vandeveer - 1986 - In Donald VanDeVeer, Paternalistic Intervention: The Moral Bounds on Benevolence. Princeton University Press. pp. 164-223.
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  22.  46
    Informed Consent in a Multicultural Cancer Patient Population: implications for nursing practice.Donelle M. Barnes, Anne J. Davis, Tracy Moran, Carmen J. Portillo & Barbara A. Koenig - 1998 - Nursing Ethics 5 (5):412-423.
    Obtaining informed consent, an ethical obligation of nurses and other health care providers, occurs routinely when patients make health care decisions. The values underlying informed consent (promotion of patients’ well-being and respect for their self-determination) are embedded in the dominant American culture. Nurses who apply the USA’s cultural values of informed consent when caring for patients who come from other cultures encounter some ethical dilemmas. This descriptive study, conducted with Latino, Chinese and Anglo-American cancer (...)
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  23.  56
    Informed Consent in Asymmetrical Relationships: an Investigation into Relational Factors that Influence Room for Reflection.Shannon Lydia Spruit, Ibo van de Poel & Neelke Doorn - 2016 - NanoEthics 10 (2):123-138.
    In recent years, informed consent has been suggested as a way to deal with risks posed by engineered nanomaterials. We argue that while we can learn from experiences with informed consent in treatment and research contexts, we should be aware that informed consent traditionally pertains to certain features of the relationships between doctors and patients and researchers and research participants, rather than those between producers and consumers and employers and employees, which are more prominent (...)
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  24. Informed Consent: What Must Be Disclosed and What Must Be Understood?Joseph Millum & Danielle Bromwich - 2021 - American Journal of Bioethics 21 (5):46-58.
    Over the last few decades, multiple studies have examined the understanding of participants in clinical research. They show variable and often poor understanding of key elements of disclosure, such as expected risks and the experimental nature of treatments. Did the participants in these studies give valid consent? According to the standard view of informed consent they did not. The standard view holds that the recipient of consent has a duty to disclose certain information to the profferer (...)
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  25.  37
    Informed Consent Is the Essence of Capacity Assessment.Jeffrey P. Spike - 2017 - Journal of Law, Medicine and Ethics 45 (1):95-105.
    Informed consent is the single most important concept for understanding decision-making capacity. There is a steady pull in the clinical world to transform capacity into a technical concept that can be tested objectively, usually by calling for a psychiatric consult. This is a classic example of medicalization. In this article I argue that is a mistake, not just unnecessary but wrong, and explain how to normalize capacity assessment.Returning the locus of capacity assessment to the attending, the primary care (...)
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  26.  34
    Informed Consent in Health Research: Challenges and Barriers in Low‐and Middle‐Income Countries with Specific Reference to Nepal.Sharada P. Wasti, Edwin van Teijlingen, Puspa Raj Pant, Om Kurmi, Nirmal Aryal & Pramod R. Regmi - 2016 - Developing World Bioethics 17 (2):84-89.
    Obtaining ‘informed consent’ from every individual participant involved in health research is a mandatory ethical practice. Informed consent is a process whereby potential participants are genuinely informed about their role, risk and rights before they are enrolled in the study. Thus, ethics committees in most countries require ‘informed consent form’ as part of an ethics application which is reviewed before granting research ethics approval. Despite a significant increase in health research activity in low-and (...)
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  27. Rethinking informed consent in bioethics.Neil C. Manson - 2007 - New York: Cambridge University Press. Edited by Onora O'Neill.
    Informed consent is a central topic in contemporary biomedical ethics. Yet attempts to set defensible and feasible standards for consenting have led to persistent difficulties. In Rethinking Informed Consent in Bioethics Neil Manson and Onora O'Neill set debates about informed consent in medicine and research in a fresh light. They show why informed consent cannot be fully specific or fully explicit, and why more specific consent is not always ethically better. They (...)
  28.  59
    Informed Consent Under Ignorance.Daniel Villiger - forthcoming - American Journal of Bioethics:1-13.
    In recent years, an old challenge to informed consent has been rediscovered: the challenge of ignorance. Several authors argue that due to the presence of irreducible ignorance in certain treatments, giving informed consent to these treatments is not possible. The present paper examines in what ways ignorance is believed to prevent informed consent and which treatments are affected by that. At this, it becomes clear that if the challenge of ignorance truly holds, it poses (...)
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  29.  29
    Does written informed consent adequately inform surgical patients? A cross sectional study.Erminia Agozzino, Sharon Borrelli, Mariagrazia Cancellieri, Fabiola Michela Carfora, Teresa Di Lorenzo & Francesco Attena - 2019 - BMC Medical Ethics 20 (1):1.
    Informed consent is an essential step in helping patients be aware of consequences of their treatment decisions. With surgery, it is vitally important for patients to understand the risks and benefits of the procedure and decide accordingly. We explored whether a written IC form was provided to patients; whether they read and signed it; whether they communicated orally with the physician; whether these communications influenced patient decisions. Adult postsurgical patients in nine general hospitals of Italy’s Campania Region were (...)
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  30.  39
    Informed Consent among Clinical Trial Participants with Different Cancer Diagnoses.Connie M. Ulrich, Sarah J. Ratcliffe, Camille J. Hochheimer, Qiuping Zhou, Liming Huang, Thomas Gordon, Kathleen Knafl, Therese Richmond, Marilyn M. Schapira, Victoria Miller, Jun J. Mao, Mary Naylor & Christine Grady - 2024 - AJOB Empirical Bioethics 15 (3):165-177.
    Importance Informed consent is essential to ethical, rigorous research and is important to recruitment and retention in cancer trials.Objective To examine cancer clinical trial (CCT) participants’ perceptions of informed consent processes and variations in perceptions by cancer type.Design and Setting and Participants Cross-sectional survey from mixed-methods study at National Cancer Institute–designated Northeast comprehensive cancer center. Open-ended and forced-choice items addressed: (1) enrollment and informed consent experiences and (2) decision-making processes, including risk-benefit assessment. Eligibility: CCT (...)
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  31.  42
    Informed consent for the diagnosis of brain death: a conceptual argument.Osamu Muramoto - 2016 - Philosophy, Ethics, and Humanities in Medicine 11:8.
    BackgroundThis essay provides an ethical and conceptual argument for the use of informed consent prior to the diagnosis of brain death. It is meant to enable the family to make critical end-of-life decisions, particularly withdrawal of life support system and organ donation, before brain death is diagnosed, as opposed to the current practice of making such decisions after the diagnosis of death. The recent tragic case of a 13-year-old brain-dead patient in California who was maintained on a ventilator (...)
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  32.  67
    Informed Consent, Understanding, and Trust.David B. Resnik - 2021 - American Journal of Bioethics 21 (5):61-63.
    Valid Informed consent to medical treatment or research participation has traditionally been viewed as consisting of the following requirements: the person has t...
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  33. Capacity, informed consent and third-party decision-making.Jacob M. Appel - 2024 - New York. NY: Cambridge University Press.
    This Element examines three related topics in the field of bioethics that arise frequently both in clinical care and in medico-legal settings: capacity, informed consent, and third-party decision-making. All three of these subjects have been shaped significantly by the shift from the paternalistic models of care that dominated medicine in the United States, Canada, and Great Britain prior to the 1960s to the present models that privilege patient autonomy. Each section traces the history of one of these topics (...)
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  34.  37
    (1 other version)Voluntary Informed Consent in Paediatric Oncology Research.Sara A. S. Dekking, Rieke Van Der Graaf & Johannes J. M. Van Delden - 2015 - Bioethics 30 (6):440-450.
    In paediatric oncology, research and treatments are often closely combined, which may compromise voluntary informed consent of parents. We identified two key scenarios in which voluntary informed consent for paediatric oncology studies is potentially compromised due to the intertwinement of research and care. The first scenario is inclusion by the treating paediatric oncologist, the second scenario concerns treatments confined to the research context. In this article we examine whether voluntary informed consent of parents for (...)
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  35.  65
    Informed Consent in Implantable BCI Research: Identifying Risks and Exploring Meaning.Eran Klein - 2016 - Science and Engineering Ethics 22 (5):1299-1317.
    Implantable brain–computer interface technology is an expanding area of engineering research now moving into clinical application. Ensuring meaningful informed consent in implantable BCI research is an ethical imperative. The emerging and rapidly evolving nature of implantable BCI research makes identification of risks, a critical component of informed consent, a challenge. In this paper, 6 core risk domains relevant to implantable BCI research are identified—short and long term safety, cognitive and communicative impairment, inappropriate expectations, involuntariness, affective impairment, (...)
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  36.  89
    Informed Consent: Foundations and Applications.Joanna Smolenski - 2021 - Dissertation, Cuny Graduate Center
    Since its advent in the 20th century, informed consent has become a cornerstone of ethical healthcare, and obtaining it a core obligation in medical contexts. In my dissertation, I aim to examine the theoretical underpinnings of informed consent and identify what values it is taken to protect. I will suggest that the fundamental motivation behind informed consent rests in something I’ll call bodily self-sovereignty, which I argue involves a coupling of two groups of values: (...)
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  37.  34
    Can our understanding of informed consent be strengthened using the idea of cluster concepts?Wayne Xavier Shandera - 2013 - Medicine, Health Care and Philosophy 16 (4):679-682.
    Informed consent is thought to exist as a well-defined entity. Altered concepts of patient autonomy, differential cultural understanding of the entity, and the failure of clients to distinguish between research and clinical ethics, and various hierarchical cultural views of informed consent all suggest that alterations may be needed in the traditional concept. By using the methodology outlined by Gasking in which he defines the idea of “cluster concepts,” one may be able to enlarge the definition and (...)
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  38.  64
    Informed consent in the ethics of responsibility as stated by Emmanuel Levinas.Javier Jiménez Benito & Sonia Ester Rodríguez García - 2016 - Medicine, Health Care and Philosophy 19 (3):443-453.
    In this paper we analyze some of the major difficulties of informed consent. We consider insufficient to base IC on the principle of autonomy. We must not forget that the patient may be in a situation of extreme vulnerability and the good doctor should assume a degree of commitment and responsibility with his/her decisions. Our aim is to introduce the ethics of responsibility of Levinas in practice and theory of IC in order to generate a beneficent medical practice (...)
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  39.  23
    Informed consent prior to nursing care: Nurses’ use of information.Helen Aveyard, Abimola Kolawole, Pratima Gurung, Emma Cridland & Olga Kozlowska - 2022 - Nursing Ethics 29 (5):1244-1252.
    Background Informed consent prior to nursing care procedures is an established principle which acknowledges the right of the patient to authorise what is done to him or her; consent prior to nursing care should not be assumed. Nursing care procedures have the potential to be unwanted by the patient and hence require an appropriate form of authorisation that takes into consideration the relationship between the nurse and patient and the ongoing nature of care delivery. Research question How (...)
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  40.  57
    Informed consent and the use of placebo in Poland: Ethical and legal aspects.Piotr Zaborowski & Adam Górski - 2004 - Science and Engineering Ethics 10 (1):167-178.
    The concept of informed consent was one of the most fruitful ideas that deeply changed the relationships between physicians and their patients from paternalism to respect for the personal autonomy of subjects needing professional medical care. The great progress in medicine, also involving the pharmaceutical industry, has created an increasing need to perform different clinical and experimental trials. The evolution of clinical research in the last decades has influenced strongly the design of these studies. One of the most (...)
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  41. Informed consent instead of assent is appropriate in children from the age of twelve: Policy implications of new findings on children’s competence to consent to clinical research.Irma M. Hein, Martine C. De Vries, Pieter W. Troost, Gerben Meynen, Johannes B. Van Goudoever & Ramón J. L. Lindauer - 2015 - BMC Medical Ethics 16 (1):1-7.
    BackgroundFor many decades, the debate on children’s competence to give informed consent in medical settings concentrated on ethical and legal aspects, with little empirical underpinnings. Recently, data from empirical research became available to advance the discussion. It was shown that children’s competence to consent to clinical research could be accurately assessed by the modified MacArthur Competence Assessment Tool for Clinical Research. Age limits for children to be deemed competent to decide on research participation have been studied: generally (...)
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  42.  31
    Psychometric evaluation of the Informed Consent Process Scale in Chinese.Shu Yu Chen, Shu-Chen Susan Chang, Chiu-Chu Lin, Qingqing Lou & Robert M. Anderson - 2019 - Nursing Ethics 26 (7-8):2456-2466.
    Background: Informed consent is essential for the ethical conduct of clinical research and is a culturally sensitive issue. But, a measurable Chinese version of the scale to evaluate the informed consent process has not yet been explored in the existing literature. Research objectives: This study aimed to develop and psychometrically test the Chinese version of the Informed Consent Process Scale. Research design: Back-translation was conducted to develop the Chinese version of the questionnaire. A cross-sectional (...)
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  43.  27
    Delegating Informed Consent.Valerie Gutmann Koch - 2017 - Hastings Center Report 47 (6):5-6.
    Ten years ago, Megan Shinal sought the care of neurosurgeon Steven Toms for the surgical treatment of a recurrent nonmalignant tumor in the pituitary region of her brain. In their twenty-minute meeting, Shinal did not make a final decision about which surgical approach she wished to pursue. Subsequently, she spoke with Tom's physician assistant once by phone and once in person, when she signed the consent form, which did not appear to designate which surgical approach she had chosen. During (...)
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  44.  55
    Informed Consent in Asymmetrical Relationships: an Investigation into Relational Factors that Influence Room for Reflection.Shannon Lydia Spruit, Ibo Poel & Neelke Doorn - 2016 - NanoEthics 10 (2):123-138.
    In recent years, informed consent has been suggested as a way to deal with risks posed by engineered nanomaterials. We argue that while we can learn from experiences with informed consent in treatment and research contexts, we should be aware that informed consent traditionally pertains to certain features of the relationships between doctors and patients and researchers and research participants, rather than those between producers and consumers and employers and employees, which are more prominent (...)
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  45.  19
    Informed consent and health: a global analysis.Thierry Vansweevelt & Nicola Glover-Thomas (eds.) - 2020 - Cheltenham, UK: Edward Elgar Publishing.
    Informed consent is the legal instrument that purports to protect an individual's autonomy and defends against medical arbitrariness. Informed Consent and Health highlights that possession of complete information about all relevant aspects of a proposed treatment is integral to the ability of a patient to make an informed choice. With patient choice at both legislative and judicial levels rising to greater levels of prominence, this timely book examines how the tensions between the rights of patients (...)
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  46.  36
    Informed consent, community engagement, and study participation at a research site in Kigali, Rwanda.Jennifer Ilo Nuil, Evelyne Kestelyn, Grace Umutoni, Lambert Mwambarangwe, Marie M. Umulisa, Janneke Wijgert & Raffaella Ravinetto - 2017 - Developing World Bioethics 18 (4):349-356.
    People enroll in medical research for many reasons ranging from decisions regarding their own or family members' health situation to broader considerations including access to health and financial resources. In socially vulnerable communities the choice to participate is often based on a risk-benefit assessment that goes beyond the medical aspects of the research, and considers the benefits received. In this qualitative study, we examined the motivations of Rwandan women to participate in a non-commercial collaborative research study examining the safety, acceptability, (...)
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  47.  37
    Informed consent procedure in a double blind randomized anthelminthic trial on Pemba Island, Tanzania: do pamphlet and information session increase caregivers knowledge?Marta S. Palmeirim, Amanda Ross, Brigit Obrist, Ulfat A. Mohammed, Shaali M. Ame, Said M. Ali & Jennifer Keiser - 2020 - BMC Medical Ethics 21 (1):1-9.
    BackgroundIn clinical research, obtaining informed consent from participants is an ethical and legal requirement. Conveying the information concerning the study can be done using multiple methods yet this step commonly relies exclusively on the informed consent form alone. While this is legal, it does not ensure the participant’s true comprehension. New effective methods of conveying consent information should be tested. In this study we compared the effect of different methods on the knowledge of caregivers of (...)
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  48.  15
    Electronic Informed Consent in Mobile Applications Research.John T. Wilbanks - 2020 - Journal of Law, Medicine and Ethics 48 (S1):147-153.
    The article covers electronic informed consent from different dimensions so that practitioners might understand the history, regulation, and current status of eIC. It covers the transition of informed consent to electronic screens and the implications of that transition in terms of design, costs, and data analysis. The article explores the limits of regulation mandating eIC for mobile application research, and addresses some of the broader social context around eIC.
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  49.  53
    Between informed consent and denying information: patient information under economical constraints. An empirical approach.Ellen Kuhlmann - 1999 - Ethik in der Medizin 11 (3):146-161.
    Definition of the problems: The physician-patient-relationship is influenced by economically driven decisions. This study explores the ethical consensus in explaining economical backgrounds of therapeutic and diagnostic interventions to patients, and the clinical practices of patient information.Method: A combination of questionnaire send to members of relevant health care organisations (n=132) and interviews with physicians working in different clinical resorts (n=15).Results and conclusion: In general there is a consensus in truth-telling about the economical background, however this ethical principle in many cases is (...)
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  50.  33
    Informed consent: A study of patients with life-threatening illnesses.Montserrat Busquets & Jordi Caïs - 2017 - Nursing Ethics 24 (4):430-440.
    Background: The relationship between healthcare professionals and patients in the Spanish health sector has undergone dramatic change. One aspect of this is that the use of informed consent has become a key factor in the delivery of adequate healthcare. But although a certain period of time has already passed since informed consent started to be used, in Spain there is still doubt about how adequately informed consent is being used. Objectives: (a) To look at (...)
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