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The Urgent Need for Health Data Justice in Precision Medicine
American Journal of Bioethics 24 (3):101-103 (2024)
Abstract
The inclusion of members of structurally marginalized communities in data-intensive innovation initiatives, such as precision medicine projects, is an urgent contemporary issue. On the one hand, th...Other Versions
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References found in this work
Precision Medicine for Whom? Public Health Outputs from “Genomics England” and “All of Us” to Make Up for Upstream and Downstream Exclusion.Ilaria Galasso - 2023 - American Journal of Bioethics 24 (3):71-85.
What is data justice? The case for connecting digital rights and freedoms globally.Linnet Taylor - 2017 - Big Data and Society 4 (2).
Reassessing the Ethics of Molecular HIV Surveillance in the Era of Cluster Detection and Response: Toward HIV Data Justice.Stephen Molldrem & Anthony K. J. Smith - 2020 - American Journal of Bioethics 20 (10):10-23.
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