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Beyond Belmont: Ensuring Respect for AI/AN Communities Through Tribal IRBs, Laws, and Policies
American Journal of Bioethics 17 (7):60-62 (2017)
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Citations of this work
Extending Research Protections to Tribal Communities.Bobby Saunkeah, Julie A. Beans, Michael T. Peercy, Vanessa Y. Hiratsuka & Paul Spicer - 2021 - American Journal of Bioethics 21 (10):5-12.
A Cross Sectional Survey of Recruitment Practices, Supports, and Perceived Roles for Unaffiliated and Non-scientist Members of IRBs.Stuart G. Nicholls, Holly A. Taylor, Richard James, Emily E. Anderson, Phoebe Friesen, Toby Schonfeld & Elyse I. Summers - 2023 - AJOB Empirical Bioethics 14 (3):174-184.
Public involvement in the governance of population-level biomedical research: unresolved questions and future directions.Sonja Erikainen, Phoebe Friesen, Leah Rand, Karin Jongsma, Michael Dunn, Annie Sorbie, Matthew McCoy, Jessica Bell, Michael Burgess, Haidan Chen, Vicky Chico, Sarah Cunningham-Burley, Julie Darbyshire, Rebecca Dawson, Andrew Evans, Nick Fahy, Teresa Finlay, Lucy Frith, Aaron Goldenberg, Lisa Hinton, Nils Hoppe, Nigel Hughes, Barbara Koenig, Sapfo Lignou, Michelle McGowan, Michael Parker, Barbara Prainsack, Mahsa Shabani, Ciara Staunton, Rachel Thompson, Kinga Varnai, Effy Vayena, Oli Williams, Max Williamson, Sarah Chan & Mark Sheehan - 2021 - Journal of Medical Ethics 47 (7):522-525.
Consideration and Disclosure of Group Risks in Genomics and Other Data-Centric Research: Does the Common Rule Need Revision?Carolyn Riley Chapman, Gwendolyn P. Quinn, Heini M. Natri, Courtney Berrios, Patrick Dwyer, Kellie Owens, Síofra Heraty & Arthur L. Caplan - 2023 - American Journal of Bioethics:1-14.
Deliberations with American Indian and Alaska Native People about the Ethics of Genomics: An Adapted Model of Deliberation Used with Three Tribal Communities in the United States.Erika Blacksher, Vanessa Y. Hiratsuka, Jessica W. Blanchard, Justin R. Lund, Justin Reedy, Julie A. Beans, Bobby Saunkeah, Micheal Peercy, Christie Byars, Joseph Yracheta, Krystal S. Tsosie, Marcia O’Leary, Guthrie Ducheneaux & Paul G. Spicer - 2021 - AJOB Empirical Bioethics 12 (3):164-178.
References found in this work
Rethinking the Belmont Report?Phoebe Friesen, Lisa Kearns, Barbara Redman & Arthur L. Caplan - 2017 - American Journal of Bioethics 17 (7):15-21.
Examining Provisions Related to Consent in the Revised Common Rule.Jeremy Sugarman - 2017 - American Journal of Bioethics 17 (7):22-26.
Defining categories of actionability for secondary findings in next-generation sequencing.Celine Moret, Alex Mauron, Siv Fokstuen, Periklis Makrythanasis & Samia A. Hurst - 2017 - Journal of Medical Ethics 43 (5):346-349.
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