This article presents an archaeological inquiry into the early histories of Quality of Life (QoL) measures, and takes this as an occasion to rethink the concept of the ‘medical model of disability’. Focusing on three instruments that set the ground for the emergence of QoL measures, namely, the Karnofsky Performance Scale (KPS, 1948), and the classification of functional capacity as a diagnostic criterion for heart diseases (Bainton, 1928) and as a supplementary aid to therapeutic criteria in rheumatoid arthritis ( Steinbrocker, (...) Traeger, and Batterman, 1949 ) – I discuss how medicine, throughout the emergence of QoL, began to expand its gaze beyond the confines of the body to what that body does in daily life. Building upon Armstrong et al.’s notion of ‘distal symptoms’ (2007) and Wahlberg’s idea of ‘knowledge of living’ (2018), I propose the notion of disabilitization to encapsulate this expansion of the clinical gaze, through which medicine has come to articulate diseases and their treatments in new ways, and in so doing, has inadvertently created disability as a new kind of knowledge category in itself – a category that is defined not through its reduction to mere pathology, but through its dispersal into everyday life. I present this concept not as a periodization, but as a provocative discontinuity with the totalizing history assumed within the medical model of disability, and in so doing, ask what, in fact, holds ‘the medical model’ together, and whether there might be other ways of understanding medicine’s complex relationship to disability than what the concept of the medical model allows us to envisage. (shrink)

This article contributes to the emerging intersectional analyses of religious studies and disability studies by conceptualizing counterprivates specific to religious spaces. To accomplish this task, we investigate the ways in which persons with disabilities, both physical and cognitive, engender counterprivate spaces within Evangelical and Mormon churches. Specifically, we posit that those with disabilities constitute a counterprivate within evangelical communities through theological incongruence and within Mormon spaces through the ways in which counterprivates inform counterpublics. Throughout this paper, we elucidate Mormon and (...) Evangelical spaces as a means of investigating the heterogeneity of private, religious spaces often unrecognized by scholarship. (shrink)

Cet article vise à déployer le concept de dismédiation proposé par Mara Mills et Jonathan Sterne pour identifier un champ de recherche à la croisée des études du handicap et des théories des média. La dismédiation est ici décrite comme une posture épistémologique ou une méthode capable de dévalider les histoires des médias universalistes et les systèmes de représentation du handicap sur lesquels elles se fondent, en proposant de concevoir la disabilité comme un élément co-constitutif de la communication et des (...) médiations. (shrink)