On July 2021, the UK High Court of Justice heard the Case CO/2066/2020 on the application of Heidi Crowter who lives with Down’s syndrome, and Máire Lea-Wilson whose son Aidan has Down’s syndrome. Crowter and Lea-Wilson, with the support of the disability rights campaign, ‘Don’t Screen Us Out’, have been taking legal action against the Secretary of State for Health and Social Care (the UK Government) for a review of the 1967 Abortion Act: the removal of section 1(1)(d) making (...) termination of pregnancy lawful for ‘severe’ fetal indications detected after 24 weeks' gestation. On 23 September 2021, the High Court dismissed the claim. This action came at a time when non-invasive prenatal testing (NIPT) was introduced into the NHS England Fetal Anomaly Screening Programme for the trisomies 21, 13 and 18. The implementation of NIPT has been heavily criticised, in particular by ‘Don’t Screen Us Out’ campaigners, for increasing fetal selection and discrimination of people living with disabilities. The case of Crowter and Lea-Wilson echoes debates in other European countries such as in France and Germany, where the introduction of NIPT in the public healthcare system has provoked equally vehement public reactions and discussions. The comparison between these three countries allows contextualising the public discourses around NIPT and the ground for termination of pregnancy in relation to different socio-cultural and political contexts. We examine how each country, and particularly England, deals with the conflict between the principles of promoting the rights of people living with disabilities and preserving women’s reproductive autonomy. (shrink)

The UN Convention on the Rights of Persons with Disabilities (CRPD) withits Optional Protocol is the first binding legal act and leading international instrumentregarding the rights of persons with disabilities. One of the principles of CRPDis “respect for inherent dignity, individual autonomy including the freedom to makeone’s own choices and independence”, whereby persons with disabilities are recognizedas holders of rights taking into account their specific situation. CRPD recognizes inArticle 6 that “women and girls with disabilities are subject to multiple discrimination”and (...) mandates signatory countries to “take measures to ensure their full and equalenjoyment of all human rights and fundamental freedoms.” The research was done inorder to examine the readiness of the state to institutionally cover the awareness of girlsand women with disabilities, their education on the issue of violence, access to servicesand information appropriate to the needs of each category separately, as well as systemicsolutions for their protection from violence. A qualitative research strategy was applied,and the research was conducted with representatives of the Centers for Social Work, representativesfrom the Ministry of Labor and Social Policy, professionals who are directproviders of services in the field of non-family protection, as well as the girls and womenwith disabilities themselves. The main conclusions that emerge from the research saythat girls and women with disabilities are more susceptible to violence, especially bytheir partners or family members. More awareness is needed to recognize and encouragereporting of violence. (shrink)

Prenatal screening can significantly benefit parents and the community. However, it has created a dilemma for women as it requires them to quickly decide whether to continue a pregnancy or terminate it should the test indicate a foetal abnormality. This can be psychologically traumatic for women torn between their connection to an unborn child with all its possible imperfections, and a desire to prevent its suffering as a disabled child in later life. A woman must also consider her own and (...) her family's future welfare. Extensive research into the physical aspects of prenatal screening has not explored the meaning of the experience for women or whether termination is the most appropriate option. This article examines recent qualitative studies, concluding that women who terminate a pregnancy following prenatal screening may experience an acute grief reaction or be plagued by guilt and fear that can precipitate marital breakdown. Additionally, there is a risk that through striving to eradicate congenital disability, a community risks promoting a cult of perfectionism that may have discriminatory effects on disabled people. (shrink)

The development and implementation of prenataldiagnosis has changed the experience of pregnancy for many women. How women make decisions about prenatal diagnosis PD is an important question that challenges us both individually and as a community. The questionof care is central to many women's decision-making process. How much care a child will require, how much care a woman feels confident to provide, and the level of care available for children with genetic conditionsand families from their communities all impact on women's (...) decisions to undertake prenatal diagnosis as well as how to use the information available from testing. Interviews with women making these decisions explored, among otherthings, the role that caring and access to care played in women's ethical deliberations. Before PD can widen women's reproductive choices and counter criticisms that its use is eugenically oriented, the central role that provision of, and access to, care holds for participants in PD programmes must be acknowledged and addressed. (shrink)

In 1998, the US Supreme Court first held that asymptomatic HIV infection constituted a disability when it ruled on the case of Bragdon v. Abbott. The use of yet another label to identify women living with HIV has been rarely questioned. While we do value the use of this label as an anti-discriminatory strategy, we believe that there is a need to examine how language and more specifically, the use of words such as disability, limitation, and impairment may (...) create new forms of identities for women living with HIV. Using this legal case as a starting point, the goal of this paper is to critically examine the 'fabrication' of asymptomatic HIV infection as a disability. Grounded in a feminist poststructuralist perspective, this paper exposes the relationship between language, social institutions, subjectivity, and power in the construction of difference. By doing so, it addresses the identification of women living with HIV/AIDS as disabled and the self-differentiation process that they must go through in order to live as normally as possible. (shrink)

In a mixed-methods study of the barriers and facilitators to homeownership for African American women with physical disabilities, self-concept emerged among the primary themes. This article discusses how participants in the study perceived themselves and negotiated how they were perceived by others as multiply marginalized women. Using what I call a feminist intersectional disability framework, I suggest that participants’ relationships to care strongly contributed to their self-concept. The “Strong Black Woman” trope and associated expectations had cultural and material relevance (...) for how they interpreted themselves and were interpreted by others as receivers, managers, and providers of care. The material reality of owning or not owning a home did not reveal significant differences in the self-concepts of homeowners versus nonhomeowners. Rather, it was through conversations about homeownership that this data around self-concept in relationship to care was revealed. (shrink)

My purpose in this essay is to locate disabled women within the women's movement as well as the disability movement in India. While foregrounding the existential realities for disabled women in the Indian scene, I underscore the reasons for their absence from the agenda of Indian feminism. I conclude by reflecting on the possibilities of inclusion within Indian feminist thought.

To the authors’ knowledge, not much has been said or done in African philosophical circles with regard to providing a theoretical framework from which the discrimination against African women with disabilities can be addressed. In this article, the authors show how such a framework can be grounded in Innocent Asouzu’s complementarism. Their contention, one grounded in this framework, is that this discrimination has its roots in an isolationist, elitist, and exclusivist mindset/metaphysics. The authors further argue that one way to overcome (...) this problematic mindset is to replace it with one that views each individual human being as a missing link of reality, that is, a complementary philosophy. The hope is that with this replacement the gaze that subconsciously views women living with disability as a group that is distinguishable from other human beings will be summarily abandoned. (shrink)

Physical appearance influences our perceptions, judgments, and decision making about others. While the current literature with regard to the perceptions and judgments of nondisabled people’s attractiveness is robust, the research investigating the perceived physical attractiveness and judgments of physically disabled individuals is scarce. Therefore, in the current study, we investigated whether people with physical disabilities are perceived by the opposite sex as more or less attractive relative to nondisabled individuals. Our results, based on over 675 participants, showed a positive effect (...) for women’s attractiveness ratings of men with physical disabilities, but not men’s attractiveness ratings of physically disabled women. Moreover, social desirability bias was positively associated with attractiveness ratings of physically disabled individuals, meaning those with higher tendency to be viewed favorably by others rated physically disabled individuals more attractive. Finally, our results revealed that attractiveness ratings of individuals with physical disabilities are positively associated with extroversion and empathy in both men and women, and positively with agreeableness and negatively with neuroticism in women. In conclusion, our study showed women rate men with physical disabilities as higher on attractiveness than nondisabled men, which is also influenced by their social desirability bias. (shrink)

For years, the sexual and reproductive health of women with intellectual and developmental disability or disabilities has been insufficiently addressed by institutions and family members due to a lack of information, training, and, sometimes, religious issues. In this context, contraceptive digital pills can enhance the sexual and reproductive control of this population group. Digital pills could help to improve adherence to treatments aimed to prevent unwanted pregnancies, as well as allowing women and their caregivers to exert better drug intake (...) control. However, there are some ethical risks to consider that may outweigh these benefits. This study sets out to explore the ethical considerations that should be taken into account in the case of a potential roll‐out of contraceptive digital pills as a way of improving the sexual and reproductive health of these women. (shrink)

La transition vers la vie adulte est une période très importante dans le développement humain puisqu’elle définit pour beaucoup de jeunes leurs futures conditions de vie. Toutefois, l’effet du handicap sur cette transition reste mal connu et la plupart des études existantes sont propres au contexte des pays à ressources élevées. En exploitant les données de l’étude HandiVIH (ANRS12302), nous examinons comment le handicap modifie les marqueurs du passage à l’âge adulte dans un contexte urbain africain, et comment ces résultats (...) varient selon la sévérité et le type de limitation fonctionnelle ainsi que le sexe. Nos résultats montrent que globalement le handicap modifie significativement le passage à l’âge adulte avec pour conséquence une situation souvent plus précaire pour les personnes handicapées. Ils montrent également que ces effets sont loin d’être homogènes et qu’il existe d’importantes variations selon le sexe et les caractéristiques du handicap. La mise en œuvre de programmes de transition à l’âge adulte sensibles au genre et aux différents types de handicap est donc nécessaire pour permettre une égalité des chances tel que c’est envisagé dans les objectifs de développement durable. (shrink)

This article is an ethnographic analysis of the mutuality that is possible in relationships between caregivers and women with intellectual disabilities who live together in L'Arche homes. Creating mutuality through which both parties grow and exercise agency requires that caregivers learn to negotiate delicate power relations connected to the physics of care and to reframe dominant stereotypes of disability. This helps them to support the women with intellectual disabilities to name and achieve their desires.

This article examines the rise of a feminist engagement with the disability rights movement. Three realms of social being—individual, society, and the state—interact in the making of the identities of disability. The emergence of Women With Disabilities Australia, suggests the ways women with disabilities come to identify with an autonomous women's group and the ways in which the particular forms of our activisms are produced.

In this paper I present a critical analysis of the English law relating to the safeguarding of vulnerable adults, in particular how the law impacts on the sexual lives of adult women with mental disabilities. I consider the discourses of vulnerability that surround the different legal regimes and whether the emerging theoretical vulnerability literature can assist in developing more nuanced legal responses. I argue that the inherent jurisdiction and Care Act 2014 provide an opportunity to move away from the focus (...) on inherent features of vulnerability such as mental disability towards a more nuanced, situational and embodied account of what it means to safeguard ‘vulnerable adults’. This has the potential to be developed in England through the new legal framework of the Care Act and can be achieved through targeting interventions against the situational causes of vulnerability, for example the perpetrators of sexual violence. (shrink)

This article focuses on the representation of female physical illness and disability in the works of two Arab women writers: Iraqi Alia Mamdouh’s Habbat al Naftalin [Mothballs] (1986) and Egyptian Salwa Bakr’s al ‘Arabah al Dhahabiyah la Tas‘ad ila al Sama’ [The Golden Chariot] (1991). It argues that the representation of female illness in these works centres upon the figure of the sick mother. Despite the limitations of this trope of illness, both novels offer a more complex illness narrative (...) than those of their Arab predecessors. By problematizing the representation of the sick woman/mother, both novels challenge the traditional role of the silent, sick female figure whose story remains outside the limits of representation. Finally, the article argues that this textual recuperation of the female suffering body is achieved through the employment of a mother— daughter plot which continues to represent the sick mother as socially and emotionally absent but which nevertheless renders her a central figure in the daughter’s narrative. (shrink)

The sexual assault of persons with mental disabilities occurs at alarmingly high rates worldwide. These assaults are a form of gender-based violence intersecting with discrimination based on disability. Our research on the treatment of such cases in the Canadian criminal justice system demonstrates the systemic barriers these victims face at the level of both substantive legal doctrine and trial procedure. Relying on feminist legal theory and disability theory, we argue in this paper that abuses of trust and power (...) underlie most sexual assaults of women with mental disabilities. We argue that existing Criminal Code provisions in Canada are inadequate to address this type of exploitation because courts have consistently failed to recognize that such abuses of power and trust are fundamentally inconsistent with any notion of voluntary consent. (shrink)

Feminist research on community care and ‘informal carers’ identified this as a women's issue but failed to address the interests and experiences of older and disabled women – those who received ‘care’ One consequence is that such feminist research has implicitly, and sometimes explicitly, undermined disabled women's rights to a home, children and personal relationships. Using qualitative research, the article highlights the actual experience of women whose physical impairment means that they need help with daily living activities, looking at the (...) different circumstances in which such help is received. The disability movement's concept of ‘independent living’ raises particular issues for disabled women. ‘Independent living’ is about having choice and control over the assistance needed, rather than necessarily doing everything for yourself. However, gender inequalities may also inhibit the choice and control that women have in their lives. Assistance can be given within a personal relationship as an expression of love, but disabled women may also experience abusive, restrictive or exploitative relationships. Public services do not generally provide assistance in a way which enables a woman to have choice and control in her life, or even to carry out child-caring or homemaking tasks. The research on the various ways of receiving personal assistance found that those women who were able to purchase their own help were most likely to be living independently, in the sense of exerting choice and control in their lives. Feminist research can help to create a space for disabled women's absent voices, and add to the pressure for change in the way that personal assistance needs are met. This is a human and civil rights issue which has a key impact on the control that disabled women have over their lives. (shrink)

Feminist scholars have been critical of the expectations placed upon mothers to accomplish a perfect version of motherhood, but have often failed to interrogate the values about normalcy and disability imbedded in modern mothering ideologies. Mothers with disabilities are well positioned to expose the underlying beliefs about normalcy with which all mothers must contend. Drawing from interviews and focus groups conducted with mothers who have physical and sensory disabilities, I explore Deaf/disabled women’s experiences negotiating the scientific motherhood regime. Illuminating (...) a paradox, I argue these women are labeled “risky mothers” under scientific motherhood, which prizes the management of risk and the prevention of disability. Yet, these mothers are simultaneously rendered invisible by inaccessible and inflexible medical practices, and by a consumer market of expert advice which prescribes that mothers inhabit a typical body. These women’s experiences illuminate the normalcy project as a central tenet of scientific motherhood. (shrink)

This article examines the Belarusian protests of 2020, triggered by the rigged presidential election results and the illegal disproportionate use of force by the authorities. Given that most protesters were apolitical before 2020, the article seeks to clarify how it happened that passive vulnerable individuals were unprecedentedly mobilized for sustained collective political action. The author focuses on protest actions organized by particularly vulnerable social groups (women, pensioners, the disabled) and reveals their importance for the democratic protest against the patriarchal-authoritarian order. (...) The article traces three stages in the protest development: the moment of traumatic shaking, the caesura of the political sublime, and the rapid scale of the peaceful protest movement characteristically represented by the social groups in question. It is argued that their protest actions had a subversive effect with respect to the autocratic rule and re-actualized an alternative normative and axiological horizon in a given life-world. (shrink)

Participatory action research (PAR) is a form of community-driven qualitative research which aims to collaboratively take action to improve participants’ lives. This is generally achieved through cognitive, reflexive learning cycles, whereby people ultimately enhance their wellbeing. This approach builds on two assumptions: (1) participants are able to reflect on and prioritize difficulties they face; (2) collective impetus and action are progressively achieved, ultimately leading to increased wellbeing. This article complicates these assumptions by analyzing a two-year PAR project with mothers of (...) disabled children from a South African urban settlement. Participant observation notes, interviews, and a group discussion served as primary data. We found that mothers’ severe psychological stress and the strong intersectionality of their daily challenges hampered participation. Consequently, mothers considered the project ‘inactionable’. Yet, many women quickly started expressing important individual and collective wellbeing transformations. To understand these ‘unlikely’ transformations, a feminist relational account, in particular, that of relational wellbeing, proves essential. We reflect on the consequences of these findings for the dominant PAR methodology and operationalization, and propose to sensitize future PAR with marginalized women by employing relational wellbeing as an overarching ontological awareness. (shrink)

This article explores twelve short narrative films created by women and trans people living with disabilities and embodied differences. Produced through Project Re•Vision, these micro documentaries uncover the cultures and temporalities of bodies of difference by foregrounding themes of multiple histories: body, disability, maternal, medical, and/or scientific histories; and divergent futurities: contradictory, surprising, unpredictable, opaque, and/or generative futures. We engage with Alison Kafer's call to theorize disability futurity by wrestling with the ways in which “the future” is normatively (...) deployed in the service of able-bodiedness and able-mindedness, a deployment used to render bodies of difference as sites of “no future”. By re-storying embodied difference, the storytellers illuminate ongoing processes of remaking their bodily selves in ways that respond to the past and provide possibilities for different futures; these orientations may be configured as “dis-topias” based not on progress, but on new pathways for living, uncovered not through evoking the familiar imaginaries of curing, eliminating, or overcoming disability, but through incorporating experiences of embodied difference into time. These temporalities gesture toward new kinds of futures, giving us glimpses of ways of cripping time, of cripping ways of being/becoming in time, and of radically re-presencing disability in futurity. (shrink)

In the polarized debates about abortion and voluntary euthanasia, disability advocates, who normally align with left-wing social forces, have tended to side with conservative and religious voices in expressing concerns about the impact of technological and sociopolitical developments on disabled futures. This paper draws on the social model of disability and the virtue ethics tradition to explain the alignment between the religious and disability perspectives, and the theory of transformative choice to highlight the limits and biases of (...) the pro-choice logic. Yet, it also recognizes the inherent contradiction of disabled advocates taking a paternalistic position against the personal agency of women and people facing terminal illnesses. A disability perspective serves the discussion of abortion and euthanasia as an encouragement to work together for the building of a society that enables people with diverse disabilities to exist and flourish, and helps pregnant women, people facing disabling and terminal illnesses, and politicians and social influencers to make informed choices. (shrink)

Chronic illness is a major cause of disability, especially in women. Therefore, any adequate feminist understanding of disability must encompass chronic illnesses. I argue that there are important differences between healthy disabled and unhealthy disabled people that are likely to affect such issues as treatment of impairment in disability and feminist politics, accommodation of disability in activism and employment, identification of persons as disabled, disability pride, and prevention and “cure” of disabilities.

ABSTRACTThe study examined the attributes of sexual violence against girls and young women with disabilities in the northern part of Ethiopia. In order to reach the proposed objective, six in-depth...

This article is the result of a mutual interest in the radical philosophical dialogue discussed by Martin Buber. The radical dialogue is rooted in western European values of humanism, values that are challenged because they exclude women, people with disabilities, non-western, indigenous people and sexual minorities. With our basis in radical dialogue we are discussing flaws within the very concept of dialogue, how dialogue is challenged in encounters between people with severe disabilities and their helpers, and we are proposing a (...) new interpretation of dialogue in a posthuman area. To illuminate what might be at stake in relations where power is clearly imbalanced we use Pierre Bourdieus theory of the gift when asking ourselves: “How can we understand dialogue when there apparently is one dominant giver and one receiver unable to return the gift?” Discussing this question, we draw on Rosi Braidotti and her Posthuman Critical Theory to see if we can find new grounds to build dialogue on. (shrink)

There is increasing research on the inclusion and exclusion of people with disabilities in African spaces, which are perpetuated by religious and cultural fear. Decision to shun or embrace people is defined by the politics of the body and influenced by the religion and culture of fear. In politics of the body, women are discriminated against because their bodies are often controlled and put under surveillance. Women with disabilities experience this discrimination more than their able-bodied counterparts and men with disabilities. (...) Written from the perspective of the ethic of ubuntu, this article examines the fear of disability among the Ndebele of Matetsi in Zimbabwe, as well as how the politics of the body are used by women with disabilities to denounce this fear. These women described how they used and and still use their bodies to call for inclusion in their communities. The article employs findings from the politics of the body emerging from the narratives of women with disabilities to propose an African women’s theology of disability.Contribution: The article problematises fear of disability as a cause of discrimination and exclusion of differently abled people particularly women with. It therefore proposes an African women’s theology of disability that is informed by the interdisciplinary approach of Ubuntu promoting the inclusion of all people including women with disabilities into the web of life. (shrink)

Disability, like questions of race, gender, and class, is one of the most provocative topics among theorists and philosophers today. This volume, situated at the intersection of feminist theory and disability studies, addresses questions about the nature of embodiment, the meaning of disability, the impact of public policy on those who have been labeled disabled, and how we define the norms of mental and physical ability. The essays here bridge the gap between theory and activism by illuminating (...) structures of power and showing how historical and cultural perceptions of the human body have been informed by and contributed to the oppression of women and disabled people. (shrink)

As both the promise and the influence of feminism have grown, women with disabilities have, with increasing intensity, pronounced themselves to be disregarded within the women's movement to an extent little different from how patriarchal society devalues them.

Many disabled people face some form of exclusion or discrimination. One of the most damaging, yet pervasive, types of exclusion is sexual exclusion. Various factors hinder sexual opportunities for disabled persons, such as social attitudes around body image, gender, and sexuality. In this paper, I engage with Sheila Jeffreys's paper, “ Disability and the Male Sex Right,” wherein she argues that discourse around sexual rights for disabled people is a veiled way of promoting male dominance over women. Though Jeffreys (...) raises many pertinent issues, she assumes that when a disabled man seeks commercial sex, he does so as an act of domination or violence. I argue that when a disabled man seeks commercial sex, he is seeking the goods of sex, such as connection, intimacy, and pleasure. (shrink)

Prenatal and preimplantation testing technologies have offered unprecedented access to information about the genetic and congenital makeup of our prospective progeny. Future developments such as preconception testing, non-intrusive prenatal testing and more extensive preimplantation testing promise to increase that access further still. The result may be greater reproductive choice, but it also increases the burden on women and men to avail themselves of these technologies in order to avoid having a child with a disability. The overwhelming question for legislators (...) has been whether and, if so, how to regulate the use of these technologies in the face of compelling but seemingly contradictory claims about the advancement of reproductive choice and the dangers of eugenic or discriminatory effects. This book examines the evolution of this legislative oversight across a number of jurisdictions and explores the tensions and ambiguities that inform these laws. (shrink)

We encounter autonomy in virtually every area of philosophy: in its relation with rationality, personality, self-identity, authenticity, freedom, moral values and motivations, and forms of government, legal, and social institutions. At the same time, the notion of autonomy has been the subject of significant criticism. Some argue that autonomy outweighs or even endangers interpersonal or collective values, while others believe it alienates subjects who don't possess a strong form of autonomy. These marginalized subjects and communities include persons with physical or (...) psychological disabilities, those in dire economic conditions, LGBTI persons, ethnic and religious minorities, and women in traditional communities or households. This volume illuminates possible patterns in these criticisms of autonomy by bringing to light and critically assessing the contribution of women throughout the history of philosophy on this important subject. The essays in this collection cover a wide range of historical periods and influential female philosophers and thinkers, from medieval philosophy through to contemporary debates. Important authors whose work is considered, among many others, include Hildegard of Bingen, Margaret Cavendish, Anne Conway, Mary Wollstonecraft, Susan Moller Okin, Hélène Cixous, Iris Marion Young, and Judith Jarvis Thomson. Women Philosophers on Autonomy will enlighten and inform contemporary debates on autonomy by bringing into the conversation previously neglected female perspectives from throughout history. (shrink)

The nursing profession’s emphasis on empathy as essential to nursing care may undermine nurses’ power as a collective and detract from perceptions of nurses’ analytical skills and expertise. The practice of empathy may also obscure and even compound patients’ suffering when it does not fully account for their subjectivity. This essay examines the relation of empathy to women’s agency and explores the role empathy plays in obscuring rather than empowering the suffering other, particularly people who are disabled, through a close (...) reading of Edith Wharton’s 1907 novel, The Fruit of the Tree, and through discussions of empathy and sympathy from literary and disability studies. (shrink)

Disability and long term incurable illness still attract a variety of demonisation and prejudice. This includes many of the same kinds of hostility that have faced women. Disabled people are blamed for their condition, regarded as bestial, grotesque and unclean. They are excluded from ritual spaces by Levitical law, modern prejudice and practical indifference. Feminist Theology has sometimes contributed to prevailing hostility, or at least, failed to counter it, in its insistence on the sacredness of the body. On the (...) other hand, Feminist Theology can provide a method of deconstructing the religious texts and imagery that make devalued people effectively invisible. Feminist critique of patriarchal structures, campaigns for full human rights, and consciously inclusive communities may offer a route for wider inclusivity and celebration of diversity. Eco-feminism is built on a framework within which scientific and medical advances may be properly and critically examined. (shrink)

Sequenom Inc., a developer of medical diagnostic products, recently made their noninvasive test for Down syndrome available for clinical practice.1 The DNA-based test—given the name “MaterniT21”—requires only a simple maternal blood sample as early as 10 weeks of gestation. In recent clinical trials involving thousands of pregnant women, the MaterniT21 test identified 99.1% of cases of Down syndrome, and gave the correct result in 99.9% of cases when the fetus did not have Down syndrome. Sequenom’s test is thought to be (...) an improvement on previous prenatal testing techniques because of its. (shrink)

The notion of being a burden to others is mostly discussed in the context of care‐intensive diseases or end‐of‐life decisions. But the notion is also crucial in decision‐making at the beginning of life, namely regarding prenatal testing. Ever more sophisticated testing methods, especially non‐invasive prenatal testing (NIPT), allow the detection of genetic traits in the unborn child that may cause disabilities. A positive result often influences the decision of the pregnant women towards a termination of the pregnancy. Thus, critics claim (...) that these testing methods send a negative message to people with disabilities. At the core of this is what we call the burden assumption. This assumption claims that children with disabilities are necessarily a burden to others, especially to their parents and other family members. In this paper, we discuss what being a burden to others means in this context and how such an attitude can be avoided without restraining reproductive autonomy. A closer examination shows that the burden assumption is mostly based on misinformation and a false model of disability. Empirical studies as well as narrative evidence from parents who raise a child with disabilities show that the burden assumption is wrong. Raising a child with disabilities does not necessarily mean a decrease in the quality of life. We show how the burden assumption can be challenged through an advanced genetic counselling that combines empirical evidence with narratives from a first‐person perspective. (shrink)

We encounter autonomy in virtually every area of philosophy: in its relation with rationality, personality, self-identity, authenticity, freedom, moral values and motivations, and forms of government, legal, and social institutions. At the same time, the notion of autonomy has been the subject of significant criticism. Some argue that autonomy outweighs or even endangers interpersonal or collective values, while others believe it alienates subjects who don’t possess a strong form of autonomy. These marginalized subjects and communities include persons with physical or (...) psychological disabilities, those in dire economic conditions, LGBTI persons, ethnic and religious minorities, and women in traditional communities or households. This volume illuminates possible patterns in these criticisms of autonomy by bringing to light and critically assessing the contribution of women throughout the history of philosophy on this important subject. The essays in this collection cover a wide range of historical periods and influential female philosophers and thinkers, from medieval philosophy through to contemporary debates. Important authors whose work is considered, among many others, include Hildegard of Bingen, Margaret Cavendish, Anne Conway, Mary Wollstonecraft, Susan Moller Okin, Hélène Cixous, Iris Marion Young, and Judith Jarvis Thomson. Women Philosophers on Autonomy will enlighten and inform contemporary debates on autonomy by bringing into the conversation previously neglected female perspectives from throughout history. (shrink)

This article examines the contradictions inherent in blind women’s appearance management. Based on an anthropological analysis of interviews with 40 blind women in Israel, the article argues that while serving as a valuable tool within stigma management, appearance management operates simultaneously as a site of rigorous discipline of the body in an effort to comply with feminine visual norms, and as a vehicle for the expression and reception of sensory pleasure. It argues for the significant role of blind women’s appearance (...) in negotiating normalcy and rejecting the normative, stigmatizing script written for them as disabled-blind-women. By studying the role of appearance in the lives of women who do not rely on sight as a central mode of perception, the article addresses the complicated position of blind women in visual culture and challenges the traditional ocular focus of the study of feminine identity and gender performance. (shrink)

Appeals to the moral authority of nature play an important role in ethical discussions about the acceptability of prenatal testing. While opponents consider testing a dangerous violation of the moral inviolable course of nature, defenders see testing as a new step in improving dominion over nature. In this study we explored the meaning of appeals to nature among pregnant women to whom a prenatal screening test was offered and the impact of these appeals on their choices regarding the acceptance of (...) screening. Contrary to theoretical debates we found that appeals to the moral authority of nature do not prevent women from welcoming the possibilities of controlling the outcomes of pregnancy, neither do they provide prima facie justification for (not) intervening in the natural course of events. Both acceptors and decliners believed in an inherent morality in nature that must be respected. They welcome the possibility of knowing more about the health of the fetus and to make their own reproductive decisions. Concerns for the quality of their child's life and for their capacity to assure a good life for their family and disabled child appear to play a central role in the decision regarding the use of screening. Appeals to nature can be interpreted as an attempt to justify beliefs regarding suffering that must be avoided and the impact that family interests may have on the decision. These findings have significant implications for ethical guidance in debates about the acceptability and boundaries of control of offspring characteristics by prenatal testing. (shrink)

Disabled women's issues, experiences, and embodiments have been misunderstood, if not largely ignored, by feminist as well as mainstream disability theorists. The reason for this, I argue, is embedded in the use of materialist and constructivist approaches to bodies that do not recognize the interaction between “sex” and “gender” and “impairment” and “disability” as material-semiotic. Until an interactionist paradigm is taken up, we will not be able to uncover fully the intersection between sexist and ableist biases that form (...) disabled women's oppressions. Relying on the understanding that sexuality is one such material-semiotic phenomenon, I examine the operation of interwoven biases in two disabled women's narratives. (shrink)

This article presents qualitative interview data to explore the health-related carework of low-income women caregivers with special-needs children and the implications of carework for women’s financial security. The author documents “direct” and “advocacy” carework as two types of caregiving that low-income women carry out in the context of declining government resources for poor disabled children. The author shows that the unique demands of carework responsibilities and the conditions of low-wage work combine to limit caregivers’ employment and education options as well (...) as their long-term prospects for financial stability. (shrink)