Living a Meaningful Life and Taking Good Care of Oneself in Times of Illness: Highlighting a Dilemma

International Journal of Feminist Approaches to Bioethics 12 (1):44-60 (2019)
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Abstract

An authoethnography explores the lived experiences of patients being in control and self-managing their chronic illness among their families and friends. Findings show that the current health discourse narrows down people to mere patients and gives rise to tensions. This article indicates that people with one or several chronic illnesses or disabilities are first of all full citizens with needs, values, and drives seeking a meaningful life. Fair possibilities ought to exist to satisfy their needs to belong, to care for and to matter to others since these constitute an essential aspect of being human.

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A theory of human motivation.A. H. Maslow - 1943 - Psychological Review 50 (4):370-396.
The Sociological Imagination.C. Wright Mills - 1960 - British Journal of Educational Studies 9 (1):75-76.
Imagining oneself otherwise.Catriona Mackenzie - 2000 - In Catriona Mackenzie & Natalie Stoljar (eds.), Relational Autonomy: Feminist Perspectives on Autonomy, Agency, and the Social Self. New York: Oxford University Press.
The Ethics of Care. Personal, Political, and Global.Virginia Held - 2007 - Tijdschrift Voor Filosofie 69 (2):399-399.

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