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Response to Open Peer Commentaries: Distinguishing the “Gift” from “Donation” as a Path toward Reciprocity and Relational Ethics
American Journal of Bioethics 21 (4):W1-W3 (2021)
Abstract
Precision medicine relies on data and biospecimens from participants who willingly offer their personal information on the promise that this act will ultimately result in knowledge that will improv...Other Versions
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Citations of this work
Community Engagement in Precision Medicine Research: Organizational Practices and Their Impacts for Equity.Janet K. Shim, Nicole Foti, Emily Vasquez, Stephanie M. Fullerton, Michael Bentz, Melanie Jeske & Sandra Soo-Jin Lee - 2023 - AJOB Empirical Bioethics 14 (4):185-196.
References found in this work
Responsibility and global justice: A social connection model.Iris Marion Young - 2006 - Social Philosophy and Policy 23 (1):102-130.
Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.Stephanie A. Kraft, Mildred K. Cho, Katherine Gillespie, Meghan Halley, Nina Varsava, Kelly E. Ormond, Harold S. Luft, Benjamin S. Wilfond & Sandra Soo-Jin Lee - 2018 - American Journal of Bioethics 18 (4):3-20.
Writing at the Margin: Discourse Between Anthropology and Medicine.Arthur Kleinman - 1995 - Univ of California Press.
Obligations of the “Gift”: Reciprocity and Responsibility in Precision Medicine.Sandra Soo-Jin Lee - 2021 - American Journal of Bioethics 21 (4):57-66.
The “Ought-Is” Problem: An Implementation Science Framework for Translating Ethical Norms Into Practice.Bryan A. Sisk, Jessica Mozersky, Alison L. Antes & James M. DuBois - 2020 - American Journal of Bioethics 20 (4):62-70.
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