Genetic Privacy in the Age of Consumer and Forensic DNA Applications

In Tomas Zima & David N. Weisstub, Medical Research Ethics: Challenges in the 21st Century. Springer Verlag. pp. 115-129 (2022)
  Copy   BIBTEX

Abstract

U.S Courts have ruled that one’s genetic information is covered by the Fourth Amendment to the Constitution, which affords persons protection against unreasonable search and seizures of their personal property and personal space. The Genetic Information Non-Discrimination Act (GINA) protects people from discrimination in health insurance and employment based on genetic information. The European Union issued the General Data Protection Regulation, which included genetic information. Yet with the development and application of DNA identification in criminal investigations, governments have amassed the genetic information of millions of people. And, with the rise of consumer genetics, especially since DNA ancestry tests went commercial in 2000, dozens of companies have amassed millions of personal DNA samples that are sold to various companies for analysis beyond their intended genealogical purpose. Where is the balance between the protection of people’s genetic information and the commercial and forensic acquisition of personal genetic data? How can genetic information be protected under the Fourth Amendment’s privacy provisions, as well as privacy laws in other countries, and yet be so whimsically distributed throughout society, so easily acquired by police, and voluntarily released to companies?

Other Versions

No versions found

Links

PhilArchive

    This entry is not archived by us. If you are the author and have permission from the publisher, we recommend that you archive it. Many publishers automatically grant permission to authors to archive pre-prints. By uploading a copy of your work, you will enable us to better index it, making it easier to find.

    Upload a copy of this work     Papers currently archived: 103,748

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

A Defense of Genetic Discrimination.Noah Levin - 2013 - Hastings Center Report 43 (4):33-42.
Legislative and Ethical Peculiarities of Human Genetic Data Protection.Danielius Serapinas - 2013 - Jurisprudencija: Mokslo darbu žurnalas 20 (1):165-179.
Property rights in genetic information.Richard A. Spinello - 2004 - Ethics and Information Technology 6 (1):29-42.
Genetic Exceptionalism and Legislative Pragmatism.Mark A. Rothstein - 2007 - Journal of Law, Medicine and Ethics 35 (S2):59-65.

Analytics

Added to PP
2023-04-13

Downloads
21 (#1,080,572)

6 months
7 (#573,527)

Historical graph of downloads
How can I increase my downloads?

Citations of this work

No citations found.

Add more citations

References found in this work

No references found.

Add more references