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In response to Ballantyne and Schaefer’s ‘Consent and the ethical duty to participate in health data research’
Nilay Hepgul, Katherine E. Sleeman, Alice M. Firth, Anna Johnston, James T. H. Teo, William Bernal, Richard J. B. Dobson & Irene J. Higginson
Journal of Medical Ethics 45 (5):351-352 (2019)
Abstract
We welcome Ballantyne & Schaefer’s discussion of the issues concerning consent and use of health data for research. In response to their acknowledgement of the need for public debate and discussion, we provide evidence from our own public consultation on this topic.Other Versions
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Citations of this work
Taxonomy of justifications for consent waivers: When and why are public views relevant?Angela Ballantyne & G. Owen Schaefer - 2019 - Journal of Medical Ethics 45 (5):353-354.
References found in this work
Consent and the ethical duty to participate in health data research.Angela Ballantyne & G. Owen Schaefer - 2018 - Journal of Medical Ethics 44 (6):392-396.
Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study.M. R. Robling - 2004 - Journal of Medical Ethics 30 (1):104-109.
Public attitudes to the use in research of personal health information from general practitioners' records: a survey of the Irish general public.Brian S. Buckley, Andrew W. Murphy & Anne E. MacFarlane - 2011 - Journal of Medical Ethics 37 (1):50-55.
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