Ethical Issues in Pre-Cancer Testing: The Parallel with Huntington's Disease

In K. W. M. Fulford, Donna Dickenson & Thomas H. Murray, Healthcare Ethics and Human Values: An Introductory Text with Readings and Case Studies. Malden, Mass.: Wiley-Blackwell. pp. 97 (2002)
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Abstract

This article, based on a case study, examines issues of confidentiality and family impact in a diagnosis of Huntington's disease. Genetic-based illness transcends individualistic models of patient autonomy because it also involves other family members, requiring a new approach to patient confidentiality.

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Donna Dickenson
Birkbeck, University of London

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